Emma’s story – Baby Loss Awareness Week

Emma’s story

Emma’s story

Isaac is our little baby boy who died at 4 days old due to a heart condition called Hypoplastic Left Heart Syndrome. We were told the diagnosis at 22 weeks pregnant and decided to go ahead with comfort care for our little boy. We were originally told Isaac would be a girl (Ivey) 3 times up until 37 weeks pregnant when it was confirmed he was a boy. Isaac managed to cram a lifetime of love into 4 days, meeting all his friends and family and being constantly showered with love and care before peacefully passing away in my arms. He will always be our firstborn and our first love and I see parts of him everyday in his little brother.


There are many organisations that offer support to anyone affected by pregnancy and baby loss.

The Lily Mae Foundation provides much needed support to parents and families who have lost a baby to stillbirth, neonatal death, miscarriage or medical termination.

Tommy’s is the largest UK pregnancy and baby loss charity, funding research into stillbirth, premature birth and miscarriage. Dedicated to finding causes and treatments to save babies’ lives as well as providing trusted pregnancy and baby loss information and support. For more information and support visit tommys.org

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