Support for you – Baby Loss Awareness Week

Baby Loss Awareness Alliance

We are so sorry to hear of any parent or family that has experienced pregnancy or baby loss.

Whatever your experience, the Alliance charities are here to support you.

I would like to talk to someone about pregnancy and baby loss

 

These organisations provide bereavement support and information to parents who have experienced pregnancy and baby loss anywhere in the UK.

Aching Arms – offer support to recently and longer ago bereaved parents after a loss during pregnancy, birth or infancy.

Call or text: 07464508994

Email: support@achingarms.co.uk

To receive the gift of an Aching Arms comfort bear email: bears@achingarms.co.uk

Adam Blue Official – Adam Blue is committed to providing ongoing assistance and support to all bereaved parents. They aim to provide a judgement-free, safe and gentle space for everyone to land.

Email: hello@adamblueofficial.com

 

ARC: Antenatal Results and Choices – specialised bereavement support around termination of pregnancy after a prenatal diagnosis.

Contact Number: 07875480076
Email: info@arc-uk.org

Care For The Family – special online support events offer understanding, encouragement and support to any parent who has suffered the death of their child, in any circumstance and at any age.

Contact number: 029 2081 0800

Children of Jannah– supporting bereaved parents who experience baby loss, holding at their core the Muslim belief that all children who die enter Heaven (called Jannah in Arabic).

Get in touch via the website here (live chat available).

Child Bereavement UK – helping children, parents and families to rebuild their lives when a child grieves or when a child dies. They support children and young people up to the age of 25 who are facing bereavement, and anyone affected by the death of a child of any age.

Helpline: 0800 02 888 40
Email: support@childbereavementuk.org

The Ectopic Pregnancy Trust – The Ectopic Pregnancy Trust supports anyone who has experienced the ordeal of ectopic pregnancy loss.

Information and support via call-back helpline and email.

Helpline: 020 7733 2653
Email: ept@ectopic.org.uk

Good Grief Trust – support and services for those experiencing grief through the loss of a loved one.  

Held In Our Hearts – providing in person and online counselling and peer support to families affected by the loss of a baby and also regular in person and online support groups for bereaved families, bereaved Dads, twin and multiples loss support, antenatal results and choices support, grandparents support and pregnancy after loss support.

The Lily Mae Foundation – providing much needed support to parents and families who have lost a baby to stillbirth, neonatal death, miscarriage or medical termination.

Lullaby Trust – support for bereaved families who have lost a child through SIDS.

Bereavement Support: 0808 802 6868
Email:support@lullabytrust.org.uk

Information Line: 0808 802 6869
Email:info@lullabytrust.org.uk

Making Miracles – the baby trauma and family bereavement care charity. Services including, professional counselling service for trauma and loss, baby trauma and bereavement care to the whole family, and ongoing emotional support on an informal level via our support team and/ or groups for high risk pregnancy, if a baby is premature or where any family has suffered trauma or loss.

Phone: 01622 735230
Email: kelly@makingmiracles.org.uk

The Miscarriage Association – support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy with helpline, live chat, email service and online support available.

Helpline: 01924 200799 (Mon-Fri, 9am-4pm)
Email: info@miscarriageassociation.org.uk

Muma Nurture – supports fertility, pregnancy and related loss through counselling, holistic therapies and support groups.

Contact Number: 07460775495

Email: contact@mumanurture.org.

Petals – the baby loss counselling charity, offering free specialist counselling to women and partners who suffer psychological distress from trauma and grief related to pregnancy or baby loss.

Helpline: 0300 688 0068
Email: counselling@petalscharity.org

SandsSaving babies’ lives. Supporting bereaved families. Up-to-date information and support available for bereaved parents, families and healthcare professionals.

Helpline: 0207 436 5881
Email: helpline@sands.org.uk

Simon Says – supporting families through the death of a loved one, including child and baby loss. 

Telephone: 023 8064 7550
Email: info@simonsays.org.uk

The Compassionate Friends – peer support for bereaved parents and their families. Please note: support is predominantly for parents who have lost a baby of a few months old rather than loss to miscarriage, stillbirth or in the early weeks of life.

Phone: 0345 123 2304 (10 am – 4 pm, 7-10 pm, every day)
Email: helpline@tcf.org.uk

Together for Short Livessupport for bereaved families and professionals working to support children. Advice for families here

Phone: 0808 8088 100

Twins Trust – the Twins Trust Bereavement Support Group (BSG) exists to support all parents and carers of multiples who have experienced loss whether it was during pregnancy, at birth or at any point afterwards.

Email: Bereavementsupport@twinstrust.org

 

I would like practical support for the death of my baby

Here you can find practical support for the death of your baby, such as respite breaks or memory boxes.

Anam Cara Fasgadh – gifting respite breaks and holidays to families bereaved through the death of a baby, child or young person.

Phone: 01631 564437

Email: Info@anamcarafasgadh.org

Memory Treasures – providing personalised memory making support to families and bereavement organisations, including handprint, footprint and fingerprint jewellery.

Telephone: 0117 450 0001
Email: info@memorytreasures.com

Simpson’s Memory Box Appeal (SiMBA) – memory boxes and baby loss support for bereaved parents and professionals.

Teddy’s Wishsupport for bereaved parents and families through care packages and fully funded counselling.

Contact them via the website here. 

I would like support with pregnancy and baby loss in my local area

Alternatives Listening Rooms– Dundee-based charity supporting parents who have a lost a baby at any stage of pregnancy or at birth with counselling and support that is free and confidential.

Phoneline: 01382 221112 (24 hour answering service)
Textline: 07599 955231 (Text now to make an appointment)

Contact via webform here.

Butterflies Bereavement Support (Hampshire, Isle of Wight and West Sussex) – providing bereavement care and support to individuals and families. Counselling and listening sessions available, along with virtual group chats, telephone and Face time support opportunities.

Phone: 01983 619503
Email: info@butterfliesbereavement.co.uk

Children’s Bereavement Centre (Nottinghamshire / Lincolnshire) – support available for those struggling with a bereavement or the terminal-illness of someone they love, via the telephone, video call, website and Facebook.

Phone: 01636 551739 (this will go straight to voicemail but messages are being picked up daily and we will call you back as soon as possible.)
Email: info@childrensbereavementcentre.co.uk

Daisy’s Dream – professional support service which responds to the needs of children and their families affected by life threatening illness or bereavement. Available in Berkshire, the surrounding areas and East Cheshire. Please note: the service is primarily focused on the children in a family, they are sadly unable to support parents unless there are already older children in the family.

Phone: 0118 934 2604

MISS (Aberdeen) – supporting anyone impacted by miscarriage. Open to any region and currently providing online support packages, as well as continuing their phone service.

Helpline: 07808 638428
Email: info@miscarriageinfosuppservice.co.uk

TimeNorfolkthe pregnancy loss charity, offering free specialist support to women and partners. Covering all pregnancy related issues.

Phone: 01603 927487
Email: info@timenorfolk.org.uk

I would like support arranging my baby’s funeral

We are so sorry you find yourself here, thinking about arranging your baby’s funeral. We hope you find the resources on this page helpful. If you need any emotional or practical support, there are many organisations waiting to help you. 

Co-op Funeralcare – support and services for funerals through the Co-op. 

Phone: 0800 088 4872

Funeralcare & Baby Loss – heartfelt and honest account of baby loss and working in funeralcare from Alliance Member Little Things & Co CEO.
Contains sensitive material that may be upsetting.

Baby funerals: Remembering with loveRosalie Kuyvenhoven speaks of her experience in leading ceremonies that honour the life and death of a baby.
Contains sensitive material that may be upsetting.

I would like support before and during pregnancy

We know many families will need support before and during pregnancy, as well as after their baby is born. The organisations on this page provide a range of information and support. 

Action on Pre-Eclampsia (APEC)– support and advice for pregnant women around pre-eclampsia.

Helpline: 01386 761 848 (Monday to Thursday from 8.30am – 4.00pm)
Email: info@apec.org.uk

APS Support – support and advice for those caring for those or diagnosed with Antiphospholipid Syndrome (APS). 

Baby Lifeline – support and advice for pregnant women and parents to babies and young children around the world.

Phone: 01676 534671
Email: info@babylifeline.org.uk

Bliss – information and support for parents who have babies born premature or sick. 

Email: hello@bliss.org.uk

CMV Action – a charity focused on raising public awareness of Congenital CMV and to campaign for better prevention measures within our health service.

Helpline: 08454679590
Email: info@cmvaction.org.uk

Fertility Network UKproviding support for pregnant women, people trying to conceive and those going through fertility treatment.

Contact Number: 01424 732361

Fertility Help Hub– an inclusive and free platform, offering a supportive communityfertility specialist guidanceshared stories and offers, collected together in one beautiful, optimistic space.

Group B Strep Support – information on group B Strep before, during and after birth provided online, by email and their helpline (weekdays 9am – 5pm.)

Helpline: 0330 120 0796
Email: info@gbss.org.uk

ICP Support – support and advice for women with ICP (intrahepatic cholestasis of pregnancy).

The Lily Foundation providing families with support and information around mitochondrial disease.

Phone: 0300 400 1234 or 07947 25724
Email: liz@thelilyfoundation.org.uk

Tommy’shealth information for parents-to-be, and funding for research into the causes of pregnancy loss.

Email: midwife@tommys.org

If you have non-urgent questions, they have developed Tommy’s Midwife, a skill for Google Assistant and Amazon Alexa that answers many pregnancy queries, including about COVID-19.

 

Kicks Count – support and advice for pregnant women and parents, focusing on the movement of the baby during pregnancy. 

Mama Academy – mother’s and Midwives Academy, providing support and advice for pregnant women. 

SMA Support UK – support for those who have or are caring for a child with Spinal Muscular Atrophy and information about the condition and the latest developments with new treatments.

Helpline: 01789 267 520

Monday to Thursday (9:00am – 3:30pm) and Friday (9:00am – 1:00pm), except public holidays.

Email: office@smauk.org.uk

Soft Uk – support for families who have received a diagnosis of Trisomy 13 or Trisomy 18 or are caring for someone who has been diagnosed.

Twins Trustsupporting families with twins, triplets and more, from pregnancy through to childhood.

Helpline: 0800 138 0509
Email: asktwinline@twinstrust.org

I would like to support a friend or family member with their grief

Heart in Their Hand – supporting families through the death of a loved one, including child and baby loss, with products available to send to others experiencing grief. 

Telephone: 07387 669 036
Email: enquiries@heartintheirhand.co.uk

Stay up-to-date with Baby Loss Awareness Week support information

 

We are regularly sharing up-to-date information from our Alliance charities via Facebook, Twitter and Instagram.

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