Organisations – Baby Loss Awareness Week

Baby Loss Awareness Alliance

Working Group Members

Sands (stillbirth and neonatal death charity)

Sands is the leading stillbirth and neonatal death charity and exists to reduce the number of babies dying and to support anyone affected by the death of a baby, before, during or shortly after birth.

Sands provides bereavement support services both nationally through its Freephone helpline (0808 164 3332), mobile app (sands.org.uk/app), online community (sands.community) and resources (sands.org.uk/book), and locally through a network of around 100 regional support groups based across the UK.

Sands works in partnership with health care professionals and offers a range of training programmes and bereavement care resources to ensure that every bereaved parent and family receives the best possible care wherever they are.

Sands promotes and funds research to better understand the causes of baby deaths and save babies’ lives. To learn more, visit www.sands.org.uk

Bliss

Bliss’ exists to give every baby born premature or sick in the UK the best chance of survival and quality of life. We support parents to be involved in their baby’s hospital care by providing them with information and emotional support, and training healthcare professionals. We campaign for changes in policy and practice and fund life-changing neonatal research. For support email hello@bliss.org.uk

For support contact our Helpline 0808 801 0322 or email hello@bliss.org.uk

The Ectopic Pregnancy Trust

Ectopic pregnancy occurs when an embryo implants in a location other than the uterus and affects 1 in 80 pregnancies. It can be life-threatening, is still a leading cause of death in the first trimester of pregnancy and the baby cannot be saved. Ectopic pregnancy is an overwhelming ordeal where a woman loses her pregnancy, often has emergency surgery, faces her own mortality and has her fertility affected and has worries about the future. The EPT provides information and support for women and their families enduring the ordeal of ectopic pregnancy.

To contact email: ept@ectopic.org.uk or call 020 7733 2653

The Lullaby Trust

The Lullaby Trust provides specialist support for bereaved families, raises awareness of Sudden Infant Death Syndrome (SIDS) and promotes expert advice on safer baby sleep. Working with the NHS, we run a national service for bereaved parents, supporting families before and after the birth of their new baby.

Free information line for parents and professionals 0808 802 6869 and a dedicated line for bereaved families 0808 802 6868 or email: support@lullabytrust.org.uk

The Miscarriage Association

Losing a baby during pregnancy can be a very unhappy, frightening and lonely experience. The Miscarriage Association helps by offering support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy.

For support call 01924 200799 or email: info@miscarriageassociation.org.uk

Tommy's

Tommy’s is the UK’s largest charity funding research into the causes of miscarriage, stillbirth and premature birth. We also provide information for parents-to-be to help them have a healthy pregnancy and baby. We believe it is unacceptable that one in four women lose a baby during pregnancy and birth, and we are dedicated to changing the statistics.

To contact email: mailbox@tommys.org or call 0207 398 3400

Members & Supporters

Abbie's Fund

Abbie’s Fund

Abbie’s Fund raises money to provide memory boxes to local hospitals to be given to parents at the start of their devastating journey to offer support, comfort and help make precious memories. We also provide Sibling memory boxes and have recently part funded the salary of a brand new full time Bereavement Midwife post at our local hospital.

We work closely with health professionals and offer financial support to fund other services in the bereavement arena as required.

To contact: call 07788568388 or email info@abbiesfund.co.uk

Abigail's Footsteps

At Abigail’s Footsteps, we know there is nothing we can do to prevent stillbirth or neonatal death. But we do know that we can help support midwives and families cope better. What started out as a grieving couple’s desire to help others has now become a powerful, influential and actionable charity that is making a demonstrable difference to people’s lives.

To contact: email info@abigailsfootsteps.co.uk or call 01634 225145

Aching Arms

Aching Arms helps bring comfort following the loss of a baby during pregnancy, at birth or infancy. They supply comfort teddy bears to parents via hospitals, hospices, support groups and funeral directors in the UK. The charity asks health professionals to offer an Aching Arms bear to every bereaved parent and discuss the emotional support available to them after they leave hospital. As the bears are donated from one bereaved family to another, each bear also reminds parents they are not alone and there are others who understand. The charity also runs free awareness training programmes for health professionals and hosts a befriending service for bereaved parents.

To contact email: support@achingarms.co.uk or call 07464508994

The Acorn Centre

The Acorn Centre is a charity that offers counselling and support for men and women involved in pregnancy-related concerns – from infertility issues to coping with an unexpected pregnancy.
We also offer a comprehensive counselling service for bereavement following pregnancy and give support to those coping with postnatal depression.
We operate throughout Warwickshire and our Centre is based in Nuneaton. In addition to face to face sessions we are also able to offer virtual counselling appointments.

For support call 024 7638 1878 / 07884966464 or E-mail: info@acorncentrewarks.org.uk

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Action on Pre-eclampsia

Every year in the UK 1,000 babies and 4 women lose their lives due to pre eclampsia. Action on Pre eclampsia supports those women and families affected by providing a helpline, raises awareness of the disease amongst the public and campaigns for more research into the disease. APEC also runs study days for those who care for pregnant women to improve detection and management of pre eclampsia.

For support call our Helpline: 020 8427 4217 or email: info@apec.org.uk

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Aidan's Elephants

Aidan’s Elephants supports Airedale NHS Foundation Trust in caring for bereaved parents and their families. We donate handmade Memory Boxes, Recognition of Life Certificates and other memorial keepsakes, along with providing funds for Midwife Bereavement Training, the ‘Sunbeam’ Bereavement Suite and specialist equipment. Our website provides online support and vital information (such as how to plan a funeral, how to find support) for both newly bereaved parents and those who lost their child many years ago. Working collaboratively, Aidan’s Elephants and ANHSFT’s Bereavement Team have secured England’s first SiMBA Tree of Tranquility for Airedale Hospital’s Baby Memorial Garden.

To contact email aidanselephants@gmail.com

ARC (Antenatal Results and Choices)

ARC offers non-directive information and support to parents before, during and after antenatal screening; when they are told their baby has an anomaly; when they are making difficult decisions about continuing with or ending a pregnancy, and when they are coping with complex and painful issues after making a decision, including bereavement.

For support email: info@arc-uk.org or call: 0207 713 7356

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APS Support

The national charity, APS Support UK, aims to achieve earlier diagnosis and offer support to anyone affected by antiphospholipid syndrome (APS) through awareness, education and research.

APS is a life-threatening autoimmune condition that causes the blood to clot too quickly. The condition can cause potentially fatal events such as strokes, heart attacks, blood clots in the lung and DVTs.

In pregnancy, APS is the most important treatable cause of recurrent miscarriage and women are five times more likely to suffer stillbirth; it is also associated with other complications such as pre-eclampsia, low weight babies and premature births.

To contact call 0300 323 9943 or email: info@aps-support.org.uk

Ayrshire Baby Loss Awareness Group

Ayrshire Baby Loss Awareness is a non-profit organisation created by a bereaved mother in memory of her beloved son, Jacob.

Our mission is to break the silence surrounding Baby Loss by organising events and sharing information in Ayrshire.

We are dedicated to campaigning for better bereavement care and specialist support for bereaved families.

Ayrshire Baby Loss Support

ABLS is a non-profit organisation.  Our main aims are to support bereaved parents, families & anyone affected by baby loss, through support meetings, email, message, & phone contact with our trained befrienders.

To provide access to bereavement counselling, for those who may require further support following a baby loss.  ​And to support our Healthcare Professionals by working collaboratively to improve & enhance professional practice with bereaved parents.

To contact call: 01563 825 402 or Email: support@ayrshirebabyloss.org

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Baby Lifeline

Baby Lifeline is a unique national charity supporting the care of pregnant women and newborn babies all over the UK to ensure the healthiest possible outcome from pregnancy and birth.

It raises funds to purchase much needed maternity equipment, and is one of the leading providers of training maternity healthcare professionals. Some specific and relevant research to improve care is also carried out.

To contact call: 01676 534 671 or Email: info@babylifeline.org.uk

Baby Loss Retreat

Baby Loss Retreat aim to relieve the emotional and psychological suffering to parents who have lost a baby to miscarriage, stillborn, Neonatal death, IVF and medical termination.

This can be done with Counselling and Trauma therapy. Respite is also offered in locations which are peaceful so that parents can spend time to reflect and talk about there Loss. Every parent who attends will receive a comfort bag to help them talk and engage as a couple.

For help and support email: babylossretreat@hotmail.com

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Beyond Bea

Beyond Bea is a charity focusing on raising awareness about baby loss and bereavement and educating health care professionals in order to improve bereavement care.

We recognise that not all health professionals deliver the same high standard of care when diagnosing and supporting families during the loss of a baby. This is often due to lack of training and inexperience.

Our aim is to ensure that all health professionals and students are offered free bereavement education and training.

To contact email: info@beyondbea.co.uk

Birmingham Women's Hospital

Birmingham Women’s Hospital is one of only two dedicated women’s hospitals in UK and is a centre of excellence providing specialist services to more than 50,000 women, babies and families every year.  Birmingham Women’s Hospital Charity’s mission is to improve the patient experience for all the women and families at the hospital.

The charity’s latest appeal is the Woodland House Appeal. Every year, the hospital cares for over 2,000 grieving mums and dads who suffer baby loss. The charity is raising £3.5million to bring a purpose-built bereavement centre to the hospital. This safe haven will be located away from the busy wards and provide a non-clinical space that recognises and honours their loss.

To contact telephone: 0121 335 8040 or email: fundraising@bwh.org.uk

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Cariad Angel Gowns

Cariad Angel Gowns take donated wedding gowns and transform them into Angel burial outfits and memory packs for those who have suffered baby loss through miscarriage, ectopic, stillbirth or neonatal loss, and gift them to hospitals funeral directors and private families together with a certificate of life acknowledging the baby’s existence for those not eligible for a birth certificate. We fundraise to gift cuddle cots to hospitals and funeral directors throughout Wales and the UK.

Child Bereavement UK

Child Bereavement UK supports families and educates professionals both when a baby or child of any age dies or is dying, and when a child is facing bereavement.

For support email: support@childbereavementuk.org or call: 0800 02 888 40

CMV Action

CMV Action is a UK organisation of parents and volunteers who have come together to raise public awareness of Congenital CMV and to campaign for better prevention measures within our health service. We offer advice, support and friendship to anyone affected by CMV.

For support email: info@cmvaction.org.uk or call: 0808 802 0030

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CRADLE

CRADLE is a national registered charity working with the NHS and private healthcare sector to provide support at the appropriate time to anyone affected by early pregnancy loss. We have a team of national volunteers who each support their local NHS CRADLE service by fundraising and providing a CRADLE comfort bag project.

Trustees provide support to HCPS in the form of workshops and adaptable learning programmes that are interactive and are bespoke for each department within each Trust.

Our NHS service is for women, couples and their extended families affected by pregnancy loss to 23 Weeks and 6 days, however we will support anyone who contacts us and is affected by pregnancy loss.

BECAUSE EVERY PREGNANCY MATTERS

To contact email: info@cradlecharity.org

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Doula UK

Doula UK was founded in 2001 to promote life-changing support from skilled doulas for families in the childbearing year regardless of circumstance, while advocating for better support for UK families.

We have approximately 700 doulas working in all parts of the United Kingdom. Each member must complete Doula UK approved training, go through a rigorous mentoring and recognition process and comply with Doula UK code of conduct and policies.

We nurture our membership, so they can unconditionally support the needs of everyone involved in pregnancy, birth and the postnatal period.

To contact: admin@doula.org.uk

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East Kent Baby Memorial Gardens Group

We run our lovely Ashford Baby Memorial Garden in Ashford town centre, just minutes away from shops, buses and trains. The Garden is open every day and helps raise awareness of baby loss. It is completely accessible and is open to everyone.

Within the Garden we have a teardrop mosaic created by local families and 300 name tiles, each one remembering one of our very special babies.  We also undertake a significant amount of awareness-raising with around thirty events each year and talk to local groups and organisations about baby loss. We are completely volunteer run.

To contact Email EKBMGG@gmail.com

Elsie’s Moon

Elsie’s Moon aims to support families when pregnancy doesn’t follow the plan.

Elsie’s Moon organise and run fully funded ‘Time For You: Self Care’ support classes. They offer a safe space, with an experienced instructor, surrounded by people who ‘get it’. Take an hour out of your busy week; focus on you, meet new friends, and find ways to manage anxiety. We provide ‘Little Butterfly’ packs after early loss, available to order directly from our website. We also provide ‘Elsie’s Essentials’ packs to hospitals for unexpected first night stays.

Keep connected with our upcoming support classes, and one-off events by following us on social media.

To contact email: support@elsiesmoon.co.uk or call: 07956539772

Ffion's Gift

Ffion’s Gift are a South Wales based charity (Reg No. Wales 1167760) that has been created in Ffion’s memory. Ffion was born in the arms of an angel on 1st April 2015, having been diagnosed with the rare, life limiting genetic condition, Trisomy 18 (Edwards Syndrome). Ffion’s Gift aim to raise as much awareness of Edwards Syndrome as possible and also raise money to subsidise £100 towards non-invasive prenatal testing, for women who have already suffered a loss to Edwards. NIPT is only currently available privately throughout Wales and costs around £450.

To contact email: ffionsgift@outlook.com

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Footsteps Counselling & Care

Footsteps Counselling & Care is a charitable organisation offering compassionate counselling and care for anyone in the Gloucestershire area affected by pregnancy-related issues.

Our vision is that anyone affected by any fertility or pregnancy-related issues, traumatic birth or baby loss for any reason can access compassionate, personalised support on the journey of coping with their traumatic experiences.

We can provide dedicated one to one or couples counselling and group support to anyone in Gloucestershire struggling with pregnancy-related issues or loss.

To contact Email: office@footstepscandc.org.uk

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Forever Stars

Forever Stars was launched in 2014, to help raise funds to provide resources that will help and support bereaved families following baby loss. The charity funds bereavement suites, training for midwives, counselling services for siblings affected by babyloss as well as providing support materials for families to use to help them cope with the loss of their baby. Forever Stars is based in Nottingham.

To contact call: 07872 463856 or email: jo.sharp@foreverstars.org

4Louis

4Louis is a UK charity that works across the country to support anyone affected by miscarriage, the death of a baby or child. We also work to improve the care bereaved families receive from health care and other professionals.

To contact: call 07955933097 or email: mail@4louis.co.uk

Frimley Health NHS Foundation Trust

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Genesis Research Trust

Founded by Professor Robert Winston, Genesis Research Trust funds research to progress the understanding of miscarriage, stillbirth, pre-term birth, and reproductive cancers, in order to reduce preventable baby loss.

The scientists who we fund are largest collaboration of reproductive health researchers in the UK, delivering real evidence-based results for medical treatments and outcomes of worldwide significance.

Our research over 40 years has transformed the lives of many parents. However, there remains significant and urgent potential to achieve far more.

To Contact Telephone: 020 7594 9741 or Email: contact@genesisresearchtrust.com

Group B Strep Support

Group B Strep Support is dedicated to eradicating group B Strep infections, including meningitis, in babies. GBSS provides up to date and evidence based information on group B Strep to families and their health professionals, and supports affected families.

For support and information, call 01444 416176 or email info@gbss.org.uk

Handmade with Love & Making Memories

Handmade with Love & Making Memories is managed by volunteers who have endured or been affected by the loss of a baby during pregnancy or infancy. We provide burial gowns, funeral boxes, to baby loss parents, funeral homes, and hospitals across the UK. Our ‘Dressed with Dignity’ project was launched in 2019 and provides burial gowns, burial wraps, and cribs for a baby at any gestation. Our Rainbow Project was launched in August 2020, and has helped 99 families to date, by providing vital information and keepsakes for families pregnant after baby loss. All our items are handmade by our volunteer’s which allows us to support community projects and the baby loss community.

Held in our Hearts

We are an Edinburgh based charity providing baby loss counselling and support to families. Formerly known as SANDS Lothians, we have 40 years’ experience of offering compassionate bereavement care in the community.

We have a range of services to support bereaved parents including specialist baby bereavement counselling that is free and open ended, as well as individual and group befriending, online closed groups on Facebook, support on the phone and by email.

To contact call: 0131 622 6263 or email: info@heldinourhearts.org.uk

Henry's Hope

Henry’s Hope is a charity set up by bereaved parents with the goal of building a supportive network and community for others who have experienced the death of a baby or child.

We are a small charity based in Barnsley, South Yorkshire. We hold bereavement support groups on the first Monday of each month, these are peer lead. We also arrange monthly family activities, mainly involving walks and meets for coffee and cake.

One of our main goals is to unite families in Barnsley and the surrounding areas and make sure they have others to talk to, others that can understand their low points and high points. We have enjoyed seeing many families forge new friendships through our efforts so far and we hope for it to continue.

To contact email: henryshopecharity@gmail.com

ICP Support

ICP Support is the leading charity for the condition intrahepatic cholestasis of pregnancy (ICP). The organisation provides research-based information and vital support to women and anyone affected by the condition. The charity also aims to raise awareness of ICP and fundraises to support ongoing research, working to achieve its vision of ensuring that every ICP baby is born safely.

To contact call: 0121 323 4316 or email: admin@icpsupport.org

Isla’s Journey

Isla’s Journey offers support to families in neonatal units from pre-admission and beyond. We understand that every family is unique and has different outcomes and so we aim to provide guidance to all.

We provide care packs to families on admission and this then spans to sibling packs and memorial boxes should they be needed. We have access to a range of resources that families can request including signposting to counselling and grievance support, access to gowns to use for babies at rest and text/ forum services that aim to bring families together in memory of their children.

To contact Whatsapp/text: 07377809540 or email: admin@islasjourney.com

JOEL The Complete Package

Promote and encourage positive mental health and wellbeing through subsequent pregnancies and parenting (either a child born before or after a loss). Empowering families to be celebrated as a whole and break the taboos associated with the life long journey of baby loss. JOEL aim to raise the awareness of pregnancy and parenting after loss and the impact this has on families, siblings, employers, schools and professionals

To contact email: support@joeltcp.org or call: 07591 740287

Jude Brady Foundation

Set up in 2008 in memory of Peter and Lynn Brady’s second son Jude who was stillborn in 2006, the Jude Brady Foundation exists to create a lasting legacy to a son that very few people got the chance to meet but who has made a huge difference to so many already. The foundation’s main priorities are to raise awareness of stillbirth and neonatal death, funds for child related good causes and help to reduce the number of babies dying each year.

To contact call: 01473 375034 or email: info@judebradyfoundation.co.uk

Kicks Count

Kicks Count is the UK’s leading fetal movement awareness campaign, educating mums-to-be on the importance of monitoring their unborn baby’s movements. We provide different types of literature, all available for medical professionals to order to distribute for free, and attend exhibitions across the country to increase awareness.

To contact email: info@kickscount.org.uk or call 07403 656611

Kit Tarka Foundation

The Kit Tarka Foundation (KTF) was established after baby Kit Tarka died from neonatal herpes at just 13 days old. Neonatal herpes or HSV is a devastating virus which can ravage a new baby’s body in a matter of days and can cause death or long term health problems such as brain damage or cerebral palsy. HSV was not suspected in Kit so he never received the antivirals which would most likely have saved his life. Kit’s parents founded KTF with a mission to prevent newborn baby deaths through research and education with initial projects focussing on neonatal herpes.

To contact email: info@kittarkafoundation.org

The Last Kiss Foundation

The Last Kiss Foundation was founded to help bereaved families who suffer a baby loss. We want every hospital to have at least 2 cuddle cots in situ to give the parents the gift of time before they have to give their last kiss goodbye.

Life

Baby Loss Matters a unique national programme launched by Life to support women, men, and families affected by baby loss. At Life, we believe that anybody who’s lost a baby deserves the support and help they need and the space they need to grieve.

Our trained staff, volunteers and BACP accredited counsellors are available for you 9am to 6pm by phone, text, or message. Our service is free and confidential.

We have three services to help those affected by baby loss within the Baby Loss Matters support service:

1. Ring our National Helpline on 0808 8025433
2. Text our Text-to-Talk service 07860 077339
3. Send a message to our email support via our website

Life After Loss

Life After Loss is here to help anyone affected by the loss of a baby. We provide support and information to those who have been through the death of a baby at any stage of pregnancy, or early in life, for any reason.

To contact email: helen@lifeafterloss.org.uk or call: 02892 605578

The Lily Foundation

The Lily Foundation is the UK’s leading charity dedicated to fighting mitochondrial disease. Our mission is to support people whose lives are affected by the condition, raise awareness and fund research into its prevention, diagnosis and treatment.

10 million people in the UK suffer from diseases in which mitochondrial dysfunction is believed to be involved, and every day in the UK a baby is born that will develop mitochondrial disease.

The Lily Foundation is fighting to change this, with our ultimate aim being to one day find a cure for mito.

To contact call Liz: 0300 400 1234 or Email: Liz@thelilyfoundation.org.uk

The Lily Mae Foundation

The Lily Mae Foundation supports Parents and Families who have tragically and traumatically lost a baby to Stillbirth or to Neonatal Death. Despite its frequency, there is very little public perception of the devastating impact of Stillbirth and Neonatal Death on Parents and their Families.

To contact: email info@lilymaefoundation.org or call 07853 969073

Little Things & Co

Little Things and Co provides emotional and practical support to anyone affected by the loss of a baby. Providing a dedicated memorial garden, suitable clothing to babies of any gestation, support group as well as practical items for professionals to improve the bereavement experience.

To contact email: info@ltandco.org

Making Miracles

Making Miracles registered charity provides baby trauma support and bereavement care. This is achieved through professional counselling, support groups, our baby memorial garden, our published book “The Baby” and memorial bears. We support the whole family including grandparents and siblings.

To contact email kelly@makingmiracles.org.uk or call 07791872115

MAMA Academy

MAMA Academy is a UK charity which has been helping save babies lives since 2012. Sadly, the UK has one of the highest stillbirth rates in the developed world with the majority of deaths potentially preventable.

We empower parents with safer pregnancy information, educate healthcare professionals on stillbirth prevention methods and raise awareness of the issues around stillbirth and early infant mortality. Our midwifery resources aid consistent maternity care across the country; improving outcomes for families and their precious babies.

To contact email: contact@mamaacademy.org.uk or call: 07427 851670

The Mariposa Trust

The Mariposa Trust works to support anyone who has suffered the loss of a baby, at any stage of pregnancy, at birth or in infancy, whether the loss be recent or historic. With 1 in 4 pregnancies ending in loss, around 250,000 families will lose a baby this year in the UK, and the Mariposa Trust is committed to remembering each life lost.

Through its 6 support divisions the charity provides a range of support options, as well as global services of remembrance at Cathedrals, Minsters and Abbeys called the ‘Saying Goodbye’ services.

For support please email support@sayinggoodbye.org or call 0845 293 8027

Memory Treasures

Memory Treasures is the only personalised jewellery brand focusing specifically on support for the bereaved with hand-crafted, sterling silver keepsakes. Our products, profile and service are sensitive to the unique requirements of those affected and the organisations that support them.

We work with NHS trusts, charities and other organisations in providing memory making support to them and the families they serve.

For further information please contact: info@memorytreasures.com

MISS (Miscarriage Information Support Service)

MISS is a support group for women and partners who have suffered a miscarriage or baby loss. It is a monthly group held in Aberdeen where we have a speaker from a health background (midwife or counsellor for example) then a therapeutic activity by a local business which members can get involved with (for example: making cards, painting chairs, yoga).

It is free of charge to attend, confidential and aim to encourage members to attend so they do not feel alone and know there is others going through similar in their local area.

To contact email: info@miss-support.org.uk and mister@miss-support.org.uk or call: 07808 638428

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The Multiple Births Foundation

The Multiple Births Foundation was founded in 1988 and has become a national and international authority on multiple births. We are the only charity internationally which employs healthcare professionals dedicated to supporting multiple birth families and educating and advising professionals about their special needs.

To contact email: mbf@imperial.nhs.uk or call 020 3313 3519 / 020 8313 3519

National Maternity Support Foundation (Jake's Charity)

National Maternity Support Foundation (NMSF) is also known as Jake’s Charity. It was set up following the tragic stillbirth of Jake Canter due to the nearest hospital maternity unit being closed.

NMSF’s founding principles are to take a ‘proactive educative approach’ to maternity care. NMSF campaigns to help keep maternity services available, accessible, safe and well resourced.

We ensure that prospective parents have all the information needed to make informed decisions. We support and promote, in partnership with other organisations, further research into stillbirth and neonatal death. We ensure there is adequate bereavement care available whenever it is required.

To contact email: info@jakescharity.org

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Nova Foundation

Nova’s aim is that families at all stages of pregnancy and babyloss (in the child’s first year) receive immediate, ongoing therapeutic trauma and bereavement support.

Nova will provide parents with tools to manage trauma and grief, whilst remembering their child, enabling parents to survive past the first year of grief whilst feeling less anxious about the future.

Nova will do this by running antenatal classes specifically for parents pregnant after a loss, which will in turn fund therapists.

For support email info@novafoundation.org.uk

Oakley's Gift

Oakley was born on 29.11.18 at Colchester General Hospital via c-section. He unfortunately gained his angel wings 6 hours later; Oakley’s Gift was set up to support bereaved parents after the loss of a baby at any gestation.

We liaise with hospitals and discover areas where there is opportunity to help parents. In order to do this, we fundraise all year round to ensure we can help as many families as possible.

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Our Angel Bears

Our Angel Bears purpose is to offer emotional support to grieving families who have babies lost to miscarriage, preterm birth, compassionate induction (also known as TFMR) stillbirth, neonatal deaths, SIDS, accident or illness.

Our Angel Bears provide several NHS trust early pregnancy assessment units with small keepsake packages that can be offered to patients in the hope of bringing some comfort and memories for those who left the hospital with empty arms and a broken heart.

To contact email: ourangelbears1@gmail.com

Our Missing Peace

Our Missing Peace is a campaign which is trying to break the silence surrounding child loss.

Our aim is to help all bereaved parents find support as quickly as possible and let others know that it is OK to talk about our children who are no longer with us.

We also hope to highlight the word ‘Vilomah’ which means “against the natural order” and is the name for a bereaved parent.

To contact call: 07724 475453 or email: ourmissingpeaceuk@outlook.com

Petals

Petals is a charity that delivers a free specialist counselling to women and partners who suffer psychological distress from trauma and grief related to pregnancy loss, as well as working nationally to raise awareness of the need for emotional support following pregnancy loss.

To contact email: contact@petalscharity.org or call: 0300 688 0068

Philip's Footprints Charitable Trust

Founded in Jersey in 2008, Philip’s Footprints offer memory boxes to local families who sadly lose a baby or child from 12-14 weeks gestation to full term or neonatal loss and older children.

They offer peer support and an annual remembrance service for families affected by the loss of a baby (any gestation) or child. They also fund antenatal training, equipment and information for pregnant women through Jersey Maternity to reduce the rate of stillbirths, premature births and complications at birth.

Contact Email: support@philipsfootprints.org Call: 01534 631173

Pregnancy Counselling & Care (Scotland)

Pregnancy Counselling & Care (Scotland) offer emotional and practical support to men, women and teenagers affected by a pregnancy related concern. Our counselling agency provides over 750 hours of free counselling per year and we see people whose lives have been impact by a range of different pregnancy related concerns including the loss of a baby.

We offer open ended therapy and place no limit on how many sessions anyone is able to get because we feel that it is important individuals to have space to explore how things connect to your life as a whole.

We also offer a fast track service where we are able to see someone within 48 hours of their initial referral for a maximum of three sessions.

Contact Email: info@counsellingandcare.co.uk or Call: 0131 557 2060

Pregnancy Crisis Care Plymouth

Providing free, confidential counselling for any pregnancy loss within Plymouth and surrounding areas; this includes grief and bereavement counselling for individuals and couples who have suffered the loss of a pregnancy/baby through miscarriage, stillbirth, neonatal death, ectopic, or other medical reasons. Longer-term counselling is available to help clients if needed.

To contact Call: 01752 246788 or Email: contact@pregnancycrisiscare.org.uk

Rainbow Trust Children's Charity

Rainbow Trust Children’s Charity enables families who have a baby or child with a life-threatening illness to make the most of time together; providing expert practical and emotional support, where they need it, for as long as it is needed.

We pair each family with an expert Family Support Worker who becomes a trusted and constant person in family life, providing support in the home and at hospital, and being there for the whole family if a child dies.

To contact email: enquiries@rainbowtrust.org.uk or call: 01372 363 438

Reflect

Reflect is a free support service in York, Harrogate and Selby for anyone facing a pregnancy choice and for those struggling after experiencing pregnancy loss.

We offer a structured support programme for anyone struggling after a miscarriage, ectopic pregnancy, stillbirth or infant death to help you work through your emotions and grief. If the loss was recent or many years ago, we are here to help you work through this experience.

All our services are free and confidential and are open to men, women and couples.

To contact Email: enquiry@reflectyork.co.uk or call: 01904 676710

The Rose Peters Foundation

The Rose Peters Foundation offer support to parents and families who have experienced the loss of their baby either, through neonatal death, infant loss, Stillbirth or miscarriage, we provide informal support, through informal support seasons.
We also provide support to parents who have a baby in Paediatric/Neonatal Intensive care, through the means of Roses craft boxes allowing for parents to create memories with their children.

Scottish Cot Death Trust

The Scottish Cot Death Trust (SCDT) is the only cot death charity in Scotland. Our support services include home visiting bereavement support, counselling and befriending and is available to any family affected by the sudden, unexpected death of a baby or young child.

SCDT funds research into the cause(s) of cot death and provides free education to parents and professional on ways to reduce the risks of cot death and to raise awareness of cot death.

To contact email: contact@scottishcotdeathtrust.org or call: 0141 357 3946

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SiMBA

SiMBA is here to support anyone who has suffered the loss of a baby during pregnancy or close to the time of birth. We help families to gather precious items for their Memory Box which we gift to them.

We understand the importance for families to spend time with their baby in one of our Family Rooms. Adding a leaf onto our Tree of Tranquillity shows parents that they are not alone in their loss and acts as a place to remember and reflect.

We also offer drop in support groups, 24 hour on-line support and training for midwives and hospital staff. Our charity aims to enhance the bereavement services already being offered and help parents rebuild their shattered lives

To contact call: 0131 353 0055 or email: enquiries@simbacharity.org.uk

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Small and Mighty Babies

Small and Mighty Babies supports families through high risk pregnancy, premature birth and baby loss through our online parent-to-parent support community.

Our Love Through Loss community offers free monthly support evenings, annual remembrance events during Pregnancy and Infant Loss week and access to voluntary bereavement doula support, free remembrance photography with Barefoot Dubai, professional bereavement counselling with Lighthouse Arabia and other clinical psychology clinics we work closely with.

Our community is large, diverse and growing to support families around the world who can come together and support one another.

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SOFT UK

SOFT UK was founded in 1990 by two mothers of children affected by Trisomy 13 (Patau’s syndrome) and Trisomy 18 (Edwards’ syndrome).  Today it remains an organisation run by families for families.

SOFT UK supports families at every stage of their Trisomy journey; through pregnancy, when caring for a child, after a loss and beyond. Support often continues for many years after the loss of a pregnancy, baby or child.

SOFT UK supports families through information, 1-2-1 support service, social media group and UK-wide Family Events.

To contact email: enquiries@soft.org.uk

Sophia Pregnancy Loss Support

Sophia – Pregnancy Loss Support aims to support anybody who has experienced the tragic loss of a baby through miscarriage, TFMR, stillbirth and neonatal death.

We aim to support through monthly groups and online support.

We aim to continue to work towards changing the taboo and silence around baby loss.

To contact email: Sophiagroup16@gmail.com

Spinal Muscular Atrophy UK

Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy). Without intervention, due to breathing difficulties, babies with the most severe form of SMA rarely survive beyond two years.

There are many families bereaved by SMA in the UK. SMA UK provides information, support, practical advice and emotional support at the time of diagnosis and through the difficult times ahead.

To contact email: supportservices@smauk.org.uk or call: 01789 267520

The TeddyRose Foundation

The TeddyRose Foundation supports bereaved families who have suffered the devastation of a baby loss.

We provide donations to families such as “cuddle blankets”. The blankets have been specially adapted so that when the time comes for the families to say goodbye to their baby, they can be separated in half. The family keep one half and the baby is snuggled up in the other.

We also provide emotional support directly to families through our various platforms and face to face at our monthly support groups.

To contact please email: info@theteddyrosefoundation.org

Teddy's Wish

Teddy’s Wish raises funds for potentially life saving research into SIDS (sudden infant death syndrome), neonatal death and stillbirth and supports grieving families.

To contact email: jennifer@teddyswish.org or call: 07813133787

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TFMR Mamas

TFMR Mamas provides free monthly support groups, a private support group on Facebook and paid weekly support groups in intimate groups of 6 TFMR Mamas with tools and mentoring to support you in processing your feelings, emotions, triggers and grief of losing your precious babies.

We also have the TFMR Mamas Hub membership which has expert speakers and those with lived experience on monthly webinars and Live Q&A’s, plus a dedicated community space away from social media to connect with other TFMR Mamas that are in a similar space in their journey to you.

To contact email: emma@tfmrmamas.com

TimeNorfolk

TimeNorfolk provides free confidential help and support to anyone:
• Who has experienced pregnancy loss through miscarriage, ectopic pregnancy, termination or stillbirth
• With an unplanned pregnancy
• Needing support through their pregnancy
• Needing support for other pregnancy related issues eg infertility, pre or post-natal depression

To contact call: 01603 482732 or email: info@timenorfolk.org.uk

Time To Talk TFMR

Time To Talk TFMR has been created by Hayley Manning and Catherine Mousley who have gone through termination for medical reasons themselves.

The podcast aims are to:
Support women and couples who are either contemplating a TFMR or who have been through a TFMR.
Raise awareness about the complexities of TFMR to the wider baby loss community and society in general.
Act as a resource of information and learning for health care professionals working with TFMR families.

Every episode has a person with the lived experience of TFMR and/or a professional who works in this area.

Topics covered are wide ranging and varied, showing the many different ways TFMR can come about and the effects it has on people’s lives.

To contact email: TalkTFMR@yahoo.com

Together for Short Lives

Together for Short Lives is the UK charity for the 49,000 children living with life-limiting conditions, and their families.

We are here to ensure that no child or family is ever left behind when it comes to getting vital care and support.

We provide help, information and support to families and work together with everyone who provides care to these children and families.

We can’t change the diagnosis, but we can help children and families make the most of their time together.

To contact email: info@togetherforshortlives.org.uk or call: 0117 989 7820 and Family Helpline 0808 8088 100

Towards Tomorrow Together

Info coming soon

Info coming soon

Twins Trust

Twins Trust is the only UK-wide charity dedicated to improving the lives of thousands of families with twins, triplets or higher multiples.

Twins Trust supports all multiple birth families, including those with Twin to Twin Transfusion Syndrome, Single Parents, parents of multiples with Special Needs and a Bereavement Support Group to support parents who have lost a child.

To contact call: 01252 332344 or email: support-team@twinstrust.org

Join the Alliance

 

Become part of the Baby Loss Awareness Week Alliance.

Whether you would like to join us a Member or Supporter, please register your interest here.