Sarah’s story – Baby Loss Awareness Week

Sarah’s story

Sarah's story

Sarah’s story

Sarah lost her baby boy 24 hours after his birth, 11 years ago, due to an inoperable heart condition. 

She said: “Having also lost a parent (my mum died six years ago), the thing that is so challenging and life-limiting about losing a child, is the loss of a future in which your child should be such a fundamental part.  When my mum died, I lost memories and shared experiences, and don’t get me wrong that too was devastating, but in a very different way.

“Losing my son meant never having the memories and experiences that I thought I’d have with him, never being the mum I would have been, never knowing what life would have been like had we not visited that darkest of holes and seen the absolute worst that life can throw at you. That unknowing and uncertainty is very, very destabilising.”

There are many organisations that offer support to anyone affected by pregnancy and baby loss.

Bliss offer emotional and practical support to empower families and equip them with the knowledge and skills they need to provide the best possible care to their baby, for however long they live and for however long their stay in neonatal care. More information:

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