Support for you – Baby Loss Awareness Week

Baby Loss Awareness Alliance

Finding support that’s right for you

We are so sorry to hear of any parent or family that has experienced pregnancy or baby loss.

 

Going through this has been especially hard during the past year and whatever your experience, the Alliance charities are here to support you.

 

On this page you will find information about the services Alliance organisations to support you:

  • UK-wide pregnancy and baby loss organisations and general bereavement support services
  • Local pregnancy and baby loss organisations providing bereavement support and information near you
  • Practical advice and support for arranging a funeral for your baby
  • Information and support relating to pregnancy and newborn health

If you need support urgently or need medical advice, please contact your local NHS service.

UK Bereavement Support

 

These organisations provide bereavement support and information to parents who have experienced pregnancy and baby loss anywhere in the UK. Some of these organisations provide support depending on your specific experience, and others provide support for bereavement generally.

Aching Arms – offer support to recently and longer ago bereaved parents after a loss during pregnancy, birth or infancy.

To contact the Supporting Arms befriending service and arrange a call back, please call or text: 07464508994 or email: support@achingarms.co.uk

To receive the gift of an Aching Arms comfort bear email: bears@achingarms.co.uk

Adam Blue Official – Adam Blue is committed to providing ongoing assistance and support to all bereaved parents. We aim to provide a judgement-free, safe and gentle space for everyone to land.

www.adamblueofficial.com

Anam Cara Fasgadh – gifting respite breaks and holidays to families bereaved through the death of a baby, child or young person.

Phone 01631 564437

Email Info@anamcarafasgadh.org

www.anamcarafasgadh.org

 

ARC: Antenatal Results and Choices – specialised bereavement support around termination of pregnancy after a prenatal diagnosis.

Contact Number: 07875480076
Email: info@arc-uk.org

Care For The Family – our special online support events offer understanding, encouragement and support to any parent who has suffered the death of their child, in any circumstance and at any age.

Children of Jannah– supporting bereaved parents who experience baby loss, holding at their core the Muslim belief that all children who die enter Heaven (called Jannah in Arabic).

Get in touch via website (live chat available): https://www.childrenofjannah.com/contact

Child Bereavement UK – helping children, parents and families to rebuild their lives when a child grieves or when a child dies. We support children and young people up to the age of 25 who are facing bereavement, and anyone affected by the death of a child of any age.

Helpline: 0800 02 888 40
Email: support@childbereavementuk.org

The Ectopic Pregnancy Trust – The Ectopic Pregnancy Trust supports anyone who has experienced the ordeal of ectopic pregnancy loss.

Information and support via call-back helpline and email.

Helpline: 020 7733 2653
Email: ept@ectopic.org.uk

First Light – professional counselling support for bereaved parents and families in Ireland

Contact Number: 1850 391 391
Email: info@firstlight.ie

Good Grief Trust – Support and services for those experiencing grief through the loss of a loved one.  

Heart in Their Hand – Supporting families through the death of a loved one, including child and baby loss, with products available to send to others experiencing grief. 

Telephone: 07387 669 036
Email: enquiries@heartintheirhand.co.uk

Held In Our Hearts – providing virtual baby loss counselling and also befriending and regular support groups online for bereavement support, dads’ support, twin and multiple loss support, antenatal results and choices support, grandparents’ support, pregnancy support and parenting after loss.

The Lily Mae Foundation – is a UK registered charity providing much needed support to parents and families who have lost a baby to stillbirth, neonatal death, miscarriage or medical termination.

Lullaby Trust – support for bereaved families who have lost a child through SIDS.

Bereavement Support: 0808 802 6868
Email: support@lullabytrust.org.uk

Information Line: 0808 802 6869
Email: info@lullabytrust.org.uk

The Miscarriage Association – support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy with helpline, live chat, email service and online support available.

Helpline: 01924 200799 (Mon-Fri, 9am-4pm)
Email: info@miscarriageassociation.org.uk

Muma Nurture – supports fertility, pregnancy and related loss through counselling, holistic therapies and support groups.

Contact Number: 07460775495

Email: contact@mumanurture.org.

Petals – the baby loss counselling charity, offering free specialist counselling to women and partners who suffer psychological distress from trauma and grief related to pregnancy or baby loss.

Helpline: 0300 688 0068
Email: counselling@petalscharity.org

Sandsstillbirth and neonatal death charity. Up-to-date information and support available for bereaved parents, families and healthcare professionals.

Helpline: 0207 436 5881
Email: helpline@sands.org.uk

Simon Says – Supporting families through the death of a loved one, including child and baby loss. 

Telephone: 023 8064 7550
Email: info@simonsays.org.uk

Simpson’s Memory Box Appeal (SiMBA) – memory boxes and baby loss support for bereaved parents and professionals.

Support Groups via Zoom: https://www.simbacharity.org.uk/support/support-groups/

Teddy’s Wishsupport for bereaved parents and families through care packages and fully funded counselling.

Contact them via the website here. 

The Compassionate Friends – peer support for bereaved parents and their families.
Please note: support is predominantly for parents who have lost a baby of a few months old rather than loss to miscarriage, stillbirth or in the early weeks of life.

Phone: 0345 123 2304 (10 am – 4 pm, 7-10 pm, every day)
Email: helpline@tcf.org.uk

Together for Short Livessupport for bereaved families and professionals working to support children.

Advice for professionals here
Advice for families here

Tommy’shealth information for parents-to-be, and funding for research into the causes of pregnancy loss.

Email: midwife@tommys.org

If you have non-urgent questions, they have developed Tommy’s Midwife, a skill for Google Assistant and Amazon Alexa that answers many pregnancy queries, including some about COVID-19.

Read more about the Tommy’s Midwife Alexa skill here.

 

Twins Trust – the Twins Trust Bereavement Support Group (BSG) exists to support all parents and carers of multiples who have experienced loss whether it was during pregnancy, at birth or at any point afterwards. We are so sorry for your loss and hope that by making contact with the BSG you will find some comfort.

Email: Bereavementsupport@twinstrust.org

 

Services near you

Here you can find services in your local area who provide support for parents and families who have experienced pregnancy and baby loss. 

Alternatives Listening Rooms– Dundee-based charity supporting  parents who have a lost a baby at any stage of pregnancy or at birth with counselling and support that is free and confidential.
Support can be face to face, telephone online or webchat.

Phoneline: 01382 221112 (24 hour answering service)
Textline: 07599 955231 (Text now to make an appointment)

Contact via webform here.

Butterflies Bereavement Support (Hampshire, Isle of Wight and West Sussex) – Providing bereavement care and support to individuals and families. Counselling and listening sessions available, along with virtual group chats, telephone and Face time support opportunities.

Phone: 01983 619503
Email: info@butterfliesbereavement.co.uk

Children’s Bereavement Centre (Nottinghamshire / Lincolnshire) – support available for those struggling with a bereavement or the terminal-illness of someone they love, via the telephone, video call, website and Facebook.

Phone: 01636 551739 (this will go straight to voicemail but messages are being picked up daily and we will call you back as soon as possible.)
Email: info@childrensbereavementcentre.co.uk

Daisy’s Dream – professional support service which responds to the needs of children and their families affected by life threatening illness or bereavement. Available in Berkshire, the surrounding areas and East Cheshire.
Please note: the service is primarily focused on the children in a family, they are sadly unable to support parents unless there are already older children in the family.

Phone: 0118 934 2604

Memory Treasures – Providing personalised memory making support to families and bereavement organisations, including handprint, footprint and fingerprint jewellery.

Telephone: 0117 450 0001
Email: info@memorytreasures.com

MISS (Aberdeen) – Supporting anyone impacted by miscarriage. Open to any region & currently providing online support packages, as well as continuing their phone service.

Helpline: 07808 638428
Email: info@miscarriageinfosuppservice.co.uk

TimeNorfolkthe pregnancy loss charity, offering free specialist support to women and partners. Covering all pregnancy related issues.

Phone:
01603 927487
Email:
info@timenorfolk.org.uk

Funerals

We are so sorry you find yourself here, thinking about arranging your baby’s funeral. We hope you find the resources on this page helpful. If you need any emotional or practical support, there are many organisations waiting to help you. 

Co-op Funeralcare – Support and services for funerals through the Co-op. 

Phone: 0800 088 4872

Funeralcare & Baby Loss – Heartfelt and honest account of baby loss and working in funeralcare from Alliance Member Little Things & Co CEO.
Contains sensitive material that may be upsetting.

Baby funerals: Remembering with loveRosalie Kuyvenhoven speaks of her experience in leading ceremonies that honour the life and death of a baby.
Contains sensitive material that may be upsetting.

Advice and support before and during pregnancy and after birth

 

We know many families will need support before and during pregnancy, as well as after their baby is born. The organisations on this page provide a range of information and support. 

Action on Pre-Eclampsia (APEC)– support and advice for pregnant women around pre-eclampsia.

Helpline: 01386 761 848 (Monday to Thursday from 8.30am – 4.00pm)
Email: info@apec.org.uk

APS Support – support and advice for those caring for those or diagnosed with Antiphospholipid syndrome (APS). 

Baby Lifeline – support and advice for pregnant women and parents to babies and young children around the world.

Phone: 01676 534671
Email: info@babylifeline.org.uk

Bliss – Support and research for parents who have babies born premature or sick. 

Email: hello@bliss.org.uk

CMV Action – a charity focused on raising public awareness of Congenital CMV and to campaign for better prevention measures within our health service.

Helpline: 08454679590
Email: info@cmvaction.org.uk

Fertility Network UKproviding support for pregnant women, people trying to conceive and those going through fertility treatment.

Contact Number: 01424 732361

Fertility Help Hub– an inclusive and free platform, offering a supportive communityfertility specialist guidanceshared stories and offers, collected together in one beautiful, optimistic space.

Group B Strep Support – information on group B Strep before, during and after birth provided online, by email and their helpline (weekdays 9am-5pm.)

Helpline: 0330 120 0796
Email: info@gbss.org.uk

ICP Support – support and advice for women with ICP (intrahepatic cholestasis of pregnancy).

The Lily Foundation providing families with support and information around mitochondrial disease.

Phone: 0300 400 1234 or 07947 25724
Email: liz@thelilyfoundation.org.uk

Kicks Count – support and advice for pregnant women and parents, focusing on the movement of the baby during pregnancy. 

Mama Academy – Mother’s and Midwives Academy, providing support and advice for pregnant women. 

SMA Support UK – support for those who have or are caring for a child with Spinal Muscular Atrophy and information about the condition and the latest developments with new treatments.

Helpline: 01789 267 520
Monday to Thursday (9:00am – 3:30pm) and Friday (9:00am – 1:00pm), except public holidays.

Please note: due to the coronavirus, all staff are currently working from home. You can still call the number above and leave a message with your contact details and we will get back to you as soon as we can.

Email: office@smauk.org.uk

Soft Uk – support for families who have received a diagnosis of Trisomy 13 or Trisomy 18 or are caring for someone who has been diagnosed.

Twins Trustsupporting families with twins, triplets and more, from pregnancy through to childhood.

Helpline: 0800 138 0509
Email: asktwinline@twinstrust.org

Stay up-to-date with Baby Loss Awareness Week support information

 

We are regularly sharing up-to-date information from our Alliance charities via Facebook, Twitter and Instagram.

Follow and tag your posts with the hashtag #BLAW