Organisations supporting Baby Loss Awareness Week

The organisations below are all supporting and promoting Baby Loss Awareness Week during 2017.

Please visit their websites and find out how you can get involved and support the vital work they do.

  • Sands, the stillbirth & neonatal death charity

    Sands supports anyone affected by the death of a baby; works in partnership with health professionals to improve the quality of care and services offered to bereaved families; and promotes and funds research and changes in practice that could help to reduce the loss of babies’ lives.

    Sands is a national organisation, with around 100 regional support groups across the UK.

    For support contact our Helpline 0808 164 3332 or email helpline@sands.org.uk

  • Bliss the special care baby charity

    Bliss’ vision is that every baby born premature and sick in the UK has the best chance of survival and quality of life. We support parents of premature or sick babies to be as involved as possible in their care and help neonatal professionals to deliver high quality baby-centered care.

    Need support? Call the Bliss helpline on 0808 801 0322 or email hello@bliss.org.uk

  • The Lullaby Trust

    The Lullaby Trust provides specialist support for bereaved families, raises awareness of Sudden Infant Death Syndrome (SIDS) and promotes expert advice on safer baby sleep. Working with the NHS, we run a national service for bereaved parents, supporting families before and after the birth of their new baby.

    Free information line for parents and professionals 0808 802 6869 and a dedicated line for bereaved families 0808 802 6868 or email: support@lullabytrust.org.uk

  • The Miscarriage Association

    Losing a baby during pregnancy can be a very unhappy, frightening and lonely experience.  The Miscarriage Association helps by offering support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy.

    For support call 01924 200799 or email: info@miscarriageassociation.org.uk

  • Tommy’s

    Tommy’s is the UK’s largest charity funding research into the causes of miscarriage, stillbirth and premature birth. We also provide information for parents-to-be to help them have a healthy pregnancy and baby. We believe it is unacceptable that one in four women lose a baby during pregnancy and birth, and we are dedicated to changing the statistics.

    To contact email: mailbox@tommys.org or call: 0207 398 3400

  • Abbie’s Fund

    Abbie’s Fund raises money to provide memory boxes to local hospitals to be given to parents at the start of their devastating journey to offer support, comfort and help make precious memories. We also provide Sibling memory boxes and have recently part funded the salary of a brand new full time Bereavement Midwife post at our local hospital.
    We work closely with health professionals and offer financial support to fund other services in the bereavement arena as required.

    To contact:  call 07788 568388 or email info@abbiesfund.co.uk

  • Abigail’s Footsteps

    At Abigail’s Footsteps, we know there is nothing we can do to prevent stillbirth or neonatal death. But we do know that we can help support midwives and families cope better. What started out as a grieving couple’s desire to help others has now become a powerful, influential and actionable charity that is making a demonstrable difference to people’s lives.

    To contact: email info@abigailsfootsteps.co.uk or call 01634 225145

  • Aching Arms

    Aching Arms helps bring comfort following the loss of a baby during any stage of pregnancy, at birth or shortly after by offering teddy bears, which are dedicated in memory of babies who have died, as comforts. We provide bears to 58 hospitals across England and Wales for midwives to offer to newly bereaved parents and will post bears directly upon request. The charity also runs free awareness training programmes for health professionals.

    To contact email: info@achingarms.co.uk or call 07876504042

     

  • Action on Pre eclampsia

    Every year in the UK 1,000 babies and 4 women lose their lives due to pre eclampsia. Action on Pre eclampsia supports those women and families affected by providing a helpline, raises awareness of the disease amongst the public and campaigns for more research into the disease. APEC also runs study days for those who care for pregnant women to improve detection and management of pre eclampsia.

    For support call our Helpline: 020 8427 4217 or email: info@apec.org.uk

  • Aidan’s Elephants

    Aidan’s Elephants supports Airedale NHS Foundation Trust in caring for bereaved parents and their families. We donate handmade Memory Boxes, Recognition of Life Certificates and other memorial keepsakes, along with providing funds for Midwife Bereavement Training, the ‘Sunbeam’ Bereavement Suite and specialist equipment. Our website provides online support and vital information (such as how to plan a funeral, how to find support) for both newly bereaved parents and those who lost their child many years ago. Working collaboratively, Aidan’s Elephants and ANHSFT’s Bereavement Team have secured England’s first SiMBA Tree of Tranquility for Airedale Hospital’s Baby Memorial Garden.

    To contact email aidanselephants@gmail.com

  • ARC (Antenatal Results and Choices)

    ARC offers non-directive information and support to parents before, during and after antenatal screening; when they are told their baby has an anomaly; when they are making difficult decisions about continuing with or ending a pregnancy, and when they are coping with complex and painful issues after making a decision, including bereavement.

    For support email: info@arc-uk.org or call: 0207 713 7356

  • APS Support

    The national charity, APS Support UK, aims to achieve earlier diagnosis and offer support to anyone affected by antiphospholipid syndrome (APS) through awareness, education and research.
    APS is a life-threatening autoimmune condition that causes the blood to clot too quickly. The condition can cause potentially fatal events such as strokes, heart attacks, blood clots in the lung and DVTs.
    In pregnancy, APS is the most important treatable cause of recurrent miscarriage and women are five times more likely to suffer stillbirth; it is also associated with other complications such as pre-eclampsia, low weight babies and premature births.

    To contact call 0300 323 9943 or email: info@aps-support.org.uk

  • Baby Lifeline

    Baby Lifeline is a unique national charity supporting the care of pregnant women and newborn babies all over the UK to ensure the healthiest possible outcome from pregnancy and birth.

    It raises funds to purchase much needed maternity equipment, and is one of the leading providers of training maternity healthcare professionals. Some specific and relevant research to improve care is also carried out.

    To contact call: 01676 534 671 or Email: info@babylifeline.org.uk

  • Cariad Angel Gowns (for stillborn and neonatal loss)

    Cariad Angel Gowns take donated wedding gowns and transform them into Angel burial outfits and memory packs for those who have suffered the baby loss through miscarriage, ectopic, stillbirth or
    neonatal loss, and gift them to hospitals funeral directors and private families together with a certificate of life acknowledging the baby’s existence for those not eligible for a birth certificate. We fundraise to gift cuddle cots to hospitals and funeral directors throughout Wales and the UK.

    To contact email: cariadan@cariadangelgowns.org.uk

  • Child Bereavement UK

    Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement. Every year we train more than 8000 professionals, helping them to better understand and meet the needs of grieving families.

    For support email: support@childbereavementuk.org or call: 0800 02 888 40

  • CMV Action

    CMV Action is a UK organisation of parents and volunteers who have come together to raise public awareness of Congenital CMV and to campaign for better prevention measures within our health service.  We offer advice, support and friendship to anyone affected by CMV.

    For support email: info@cmvaction.org.uk or call: 0808 802 0030

  • The Ectopic Pregnancy Trust

    Ectopic pregnancy is a life threatening condition, which affects 1 in 80 pregnancies. The Ectopic Pregnancy Trust aims to raise awareness of ectopic pregnancy and early pregnancy complications and provide support and information to those affected and those involved in their care.

    For support call: 020 7733 2653 (call-back helpline service) or email: ept@ectopic.org.uk

  • The Last Kiss Foundation

    The Last Kiss Foundation was founded to help bereaved families.  We want every hospital equipped to ensure families have the gift of time before they have to give their last kiss goodbye. We will also try to help a family in need with financial support so that no baby is buried in an unidentified grave.  We are working with others to provide bespoke training to midwives so that they can support grieving parents.

    To contact email: info@thelastkissfoundation.co.uk or call 07814 660742

  • Group B Strep Support

    Group B Strep Support is dedicated to eradicating group B Strep infections, including meningitis, in babies. GBSS provides up to date and evidence based information on group B Strep to families and their health professionals, and supports affected families.

    For support and information, call 01444 416176 or email info@gbss.org.uk.

  • ICP Support

    ICP Support is the leading charity for the condition intrahepatic cholestasis of pregnancy (ICP). The organisation provides research-based information and vital support to women and anyone affected by the condition. The charity also aims to raise awareness of ICP and fundraises to support ongoing research, working to achieve its vision of ensuring that every ICP baby is born safely.

    To contact call: 0121 323 4316 or email: admin@icpsupport.org

  • Jude Brady Foundation

    Set up in 2008 in memory of Peter & Lynn Brady’s second son Jude who was stillborn in 2006, the Jude Brady Foundation exists to create a lasting legacy to a son that very few people got the chance to meet but who has made a huge difference to so many already. The foundation’s main priorities are to raise awareness of stillbirth and neonatal death, funds for child related good causes and help to reduce the number of babies dying each year.

    To contact call: 01473 375034 or email: nicola@judebradyfoundation.co.uk

  • Kicks Count

    Kicks Count is the UK’s leading fetal movement awareness campaign, educating mums-to-be on the importance of monitoring their unborn baby’s movements.  We provide different types of literature, all available for medical professionals to order to distribute for free, and attend exhibitions across the country to increase awareness.

    To contact email: info@kickscount.org.uk or call 07403 656611

  • Life After Loss

    Life After Loss is here to help anyone affected by the loss of a baby. We provide support and information to those who have been through the death of a baby at any stage of pregnancy, or early in life, for any reason.

    To contact email: helen@lifeafterloss.org.uk or call: 02892 605578

  • The Lily Foundation

    The Lily Foundation is the UK’s leading charity dedicated to fighting mitochondrial disease. Our mission is to support people whose lives are affected by the condition, raise awareness and fund research into its prevention, diagnosis and treatment. 10 million people in the UK suffer from diseases in which mitochondrial dysfunction is believed to be involved, and every day in the UK a baby is born that will develop mitochondrial disease. The Lily Foundation is fighting to change this, with our ultimate aim being to one day find a cure for mito.

    To contact call Liz: 0300 400 1234 or Email: Liz@thelilyfoundation.org.uk

  • The Lily Mae Foundation

    The Lily Mae Foundation supports Parents and Families who have tragically and traumatically lost a baby to Stillbirth or to Neonatal Death. Despite its frequency, there is very little public perception of the devastating impact of Stillbirth and Neonatal Death on Parents and their Families.

    To contact: email info@lilymaefoundation.org or call 07853 969073

  • Little Things and Co

    Little Things and Co provides emotional and practical support to anyone affected by the loss of a baby.  Providing a dedicated memorial garden, suitable clothing to babies of any gestation, support group as well as practical items for professionals to improve the bereavement experience.

    To contact email: info@ltandco.org

  • Making Miracles

    We help families of high risk pregnancies, premature babies & those who have suffered loss. We support through counselling, a Baby Memorial Garden, “buddying” & a forum.
    We provide specialist equipment to identify symptoms earlier in order to have a positive outcome & research baby loss so more effective intervention & prevention may be established leading to the UK’s statistics becoming lower.

    To contact email kelly@makingmiracles.org.uk or call 07791872115

  • MAMA Academy

    MAMA Academy is a pregnancy charity empowering mums and midwives to help more babies arrive safely. The UK has one of the highest stillbirth rates in the developed world, of which the majority are preventable so our mission is to save babies’ lives by promoting stillbirth prevention strategies. We empower parents on when they should call their maternity team for advice. We also support midwives by keeping them up to date with current guidelines to aid consistent maternity care. All our information is written by our team of medical professionals and our website is accredited by The Royal College of Midwives for professionals.

    To contact email: contact@mamaacademy.org.uk or call: 07427 851670

  • The Mariposa Trust

    The Mariposa Trust works to support anyone who has suffered the loss of a baby, at any stage of pregnancy, at birth or in infancy, whether the loss be recent or historic. With 1 in 4 pregnancies ending in loss, around 250,000 families will lose a baby this year in the UK, and the Mariposa Trust is committed to remembering each life lost. Through its 6 support divisions the charity provides a range of support options, as well as global services of remembrance at Cathedrals, Minsters and Abbeys called the ‘Saying Goodbye’ services.

    For support please email support@sayinggoodbye.org or call 0845 293 8027

  • MASS Miscarriage And Stillborn Support

    MASS works to relieve the suffering and emotional distress amongst parents who have experienced the loss of a baby through miscarriage and stillbirth, in particular but not exclusively by providing regular support groups with trained counsellors within the UK alongside offering free and confidential online support and advice. MASS also promotes improved aftercare with bereavement support and FREE aftercare packages.

    To contact email massmanagement.uk@gmail.com or call 01234 219909 / 07549637717

  • MISS (Miscarriage Information Support Service)

    MISS is a support group for women and their partners that have suffered a miscarriage. It is a free and confidential service with monthly support sessions in Danestone Community Centre, Aberdeen.

     

    To contact email: miscarriageinfosuppservice@gmail.com or call: 07702464874

  • The Multiple Births Foundation

    The Multiple Births Foundation was founded in 1988 and has become a national and international authority on multiple births. We are the only charity internationally which employs healthcare professionals dedicated to supporting multiple birth families and educating and advising professionals about their special needs.

    To contact email: mbf@imperial.nhs.uk or call 020 3313 3519 / 020 8313 3519

  • National Maternity Support Foundation (NMSF)

    National Maternity Support Foundation (NMSF) is also known as Jake’s Charity. It was set up following the tragic stillbirth of Jake Canter due to the nearest hospital maternity unit being closed. NMSF’s founding principles are to take a ‘proactive educative approach’ to maternity care. NMSF campaigns to help keep maternity services available, accessible, safe and well resourced. We ensure that prospective parents have all the information needed to make informed decisions. We support and promote, in partnership with other organisations, further research into stillbirth and neonatal death. We ensure there is adequate bereavement care available whenever it is required.

    To contact email: info@jakescharity.org

  • Our Missing Peace

    Our Missing Peace is a campaign which is trying to break the silence surrounding child loss. Our aim is to help all bereaved parents find support as quickly as possible and let others know that it is OK to talk about our children who are no longer with us. We also hope to highlight the word ‘Vilomah’ which means “against the natural order” and is the name for a bereaved parent.

    To contact call: 07724 475453 or email: ourmissingpeaceuk@outlook.com

  • Petals

    Petals is a charity that delivers a free specialist counselling to women and partners who suffer psychological distress from trauma and grief related to pregnancy loss, as well as working nationally to raise awareness of the need for emotional support following pregnancy loss.

    To contact email: contact@petalscharity.org or call: 0300 688 0068

  • Pregnancy Crisis Care (Plymouth & SE Cornwall)

    Since 2008, we have been providing free, confidential counselling for any pregnancy-related crises within Plymouth and the surrounding areas.  This includes grief and bereavement counselling for individuals and couples who have suffered the loss of a pregnancy/baby through miscarriage, stillbirth, neonatal death, ectopic, or therapeutic termination for medical reasons.  We provide longer-term counselling for clients, to help them process and work through difficult anniversaries and significant dates.

    To contact Call: 01752 246788 or Email: contact@pregnancycrisiscare.org.uk

  • SANDS Lothians

    SANDS Lothians offers support, understanding and help, both of a practical and emotional nature to bereaved parents who have experienced the death of a baby through miscarriage, stillbirth or soon after birth. We offer person centred support ranging from one to one befriending to various monthly group meetings and communication via telephone, email or Facebook and free counselling both in Edinburgh and West Lothian.

    To contact call: 0131 622 6263 or email: info@sands-lothians.org.uk

     

  • Scottish Cot Death Trust

    The Scottish Cot Death Trust (SCDT) is the only cot death charity in Scotland. Our support services include home visiting bereavement support, counselling and befriending and is available to any family affected by the sudden, unexpected death of a baby or young child. SCDT funds research into the cause(s) of cot death and provides free education to parents and professional on ways to reduce the risks of cot death and to raise awareness of cot death.

    To contact email: contact@scottishcotdeathtrust.org or call: 0141 357 3946

  • SiMBA

    SiMBA is here to support anyone who has suffered the loss of a baby during pregnancy or close to the time of birth. We aim to enhance the bereavement services already being offered and help families to gather precious items for their Memory Box. We understand the importance of Family Rooms and the need for a place to remember and reflect with our Tree of Tranquillity. We also offer drop in support groups, 24 hour on-line support and training for midwives and hospital staff.

    To contact email: events@simbacharity.org.uk or call 01368 860 141

  • Spinal Muscular Atrophy Support UK

    Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive loss of movement and muscle weakness as a result of muscle wasting (atrophy). Sadly, due to breathing difficulties, babies with SMA Type 1 rarely survive their second birthday. SMA Support UK provides information, practical advice and emotional support to families from the time of diagnosis and throughout the difficult days that lie ahead.

    To contact email: supportservices@smasupportuk.org.uk or call: 01789 267520 

  • The Twins and Multiple Births Association

    Tamba is the only UK-wide charity dedicated to improving the lives of thousands of families with twins, triplets or higher multiples. Tamba supports all multiple birth families, including those with Twin to Twin Transfusion Syndrome, Single Parents, parents of multiples with Special Needs and a Bereavement Support Group to support parents who have lost a child.

    To contact call: 01252 332344 or email: support-team@tamba.org.uk

  • Teddy’s Wish

    Teddy’s Wish raises funds for potentially life saving research into SIDS (sudden infant death syndrome), neonatal death and stillbirth and supports grieving families.

    To contact email: jennifer@teddyswish.org or call: 07813133787

  • TimeNorfolk

    TimeNorfolk provides free face to face support through talking therapies to anyone affected by a pregnancy related issue in Norfolk. We offer support to women and men who have suffered a pregnancy loss due to miscarriage, stillbirth, ectopic pregnancy, termination or infertility. We help people to express their emotions concerning their loss, e.g. grief, anger, shame and that leads to sessions on acceptance, forgiveness and letting go. We offer a safe place where clients who find themselves with an unplanned pregnancy can talk through their situation and the different options, so that they can make an informed choice. We offer support with other pregnancy related issues eg Pre & Post Natal Depression.

    To contact call: 01603 482732  or email: info@timenorfolk.org.uk 

  • Together for Short Lives

    Together for Short Lives is the leading UK charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. Our work helps to ensure that children can get the best possible care, wherever and whenever they need it.

    To contact email: myra.johnson@togetherforshortlives.org.uk or call: 0117 989 7820