The organisations below are all supporting and promoting Baby Loss Awareness Week during 2019.
Please visit their websites and find out how you can get involved and support the vital work they do.
Sands, the stillbirth & neonatal death charity
Sands supports anyone affected by the death of a baby; works in partnership with health professionals to improve the quality of care and services offered to bereaved families; and promotes and funds research and changes in practice that could help to reduce the loss of babies’ lives.
Sands is a national organisation, with around 100 regional support groups across the UK.
For support contact our Helpline 0808 164 3332 or email email@example.com
Bliss the special care baby charity
Bliss’ vision is that every baby born premature and sick in the UK has the best chance of survival and quality of life. We support parents of premature or sick babies to be as involved as possible in their care and help neonatal professionals to deliver high quality baby-centered care.
Need support? Call the Bliss helpline on 0808 801 0322 or email firstname.lastname@example.org
The Lullaby Trust
The Lullaby Trust provides specialist support for bereaved families, raises awareness of Sudden Infant Death Syndrome (SIDS) and promotes expert advice on safer baby sleep. Working with the NHS, we run a national service for bereaved parents, supporting families before and after the birth of their new baby.
Free information line for parents and professionals 0808 802 6869 and a dedicated line for bereaved families 0808 802 6868 or email: email@example.com
The Miscarriage Association
Losing a baby during pregnancy can be a very unhappy, frightening and lonely experience. The Miscarriage Association helps by offering support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy.
For support call 01924 200799 or email: firstname.lastname@example.org
Tommy’s is the UK’s largest charity funding research into the causes of miscarriage, stillbirth and premature birth. We also provide information for parents-to-be to help them have a healthy pregnancy and baby. We believe it is unacceptable that one in four women lose a baby during pregnancy and birth, and we are dedicated to changing the statistics.
To contact email: email@example.com or call: 0207 398 3400
Abbie’s Fund raises money to provide memory boxes to local hospitals to be given to parents at the start of their devastating journey to offer support, comfort and help make precious memories. We also provide Sibling memory boxes and have recently part funded the salary of a brand new full time Bereavement Midwife post at our local hospital.
We work closely with health professionals and offer financial support to fund other services in the bereavement arena as required.
To contact: call 07788 568388 or email firstname.lastname@example.org
At Abigail’s Footsteps, we know there is nothing we can do to prevent stillbirth or neonatal death. But we do know that we can help support midwives and families cope better. What started out as a grieving couple’s desire to help others has now become a powerful, influential and actionable charity that is making a demonstrable difference to people’s lives.
To contact: email email@example.com or call 01634 225145
Aching Arms helps bring comfort following the loss of a baby during any stage of pregnancy, at birth or shortly after by offering teddy bears, which are dedicated in memory of babies who have died, as comforts. We provide bears to 58 hospitals across England and Wales for midwives to offer to newly bereaved parents and will post bears directly upon request. The charity also runs free awareness training programmes for health professionals.
To contact email: firstname.lastname@example.org or call 07876504042
Action on Pre eclampsia
Every year in the UK 1,000 babies and 4 women lose their lives due to pre eclampsia. Action on Pre eclampsia supports those women and families affected by providing a helpline, raises awareness of the disease amongst the public and campaigns for more research into the disease. APEC also runs study days for those who care for pregnant women to improve detection and management of pre eclampsia.
For support call our Helpline: 020 8427 4217 or email: email@example.com
Aidan’s Elephants supports Airedale NHS Foundation Trust in caring for bereaved parents and their families. We donate handmade Memory Boxes, Recognition of Life Certificates and other memorial keepsakes, along with providing funds for Midwife Bereavement Training, the ‘Sunbeam’ Bereavement Suite and specialist equipment. Our website provides online support and vital information (such as how to plan a funeral, how to find support) for both newly bereaved parents and those who lost their child many years ago. Working collaboratively, Aidan’s Elephants and ANHSFT’s Bereavement Team have secured England’s first SiMBA Tree of Tranquility for Airedale Hospital’s Baby Memorial Garden.
To contact email firstname.lastname@example.org
ARC (Antenatal Results and Choices)
ARC offers non-directive information and support to parents before, during and after antenatal screening; when they are told their baby has an anomaly; when they are making difficult decisions about continuing with or ending a pregnancy, and when they are coping with complex and painful issues after making a decision, including bereavement.
For support email: email@example.com or call: 0207 713 7356
The national charity, APS Support UK, aims to achieve earlier diagnosis and offer support to anyone affected by antiphospholipid syndrome (APS) through awareness, education and research.
APS is a life-threatening autoimmune condition that causes the blood to clot too quickly. The condition can cause potentially fatal events such as strokes, heart attacks, blood clots in the lung and DVTs.
In pregnancy, APS is the most important treatable cause of recurrent miscarriage and women are five times more likely to suffer stillbirth; it is also associated with other complications such as pre-eclampsia, low weight babies and premature births.
To contact call 0300 323 9943 or email: firstname.lastname@example.org
Baby Lifeline is a unique national charity supporting the care of pregnant women and newborn babies all over the UK to ensure the healthiest possible outcome from pregnancy and birth.
It raises funds to purchase much needed maternity equipment, and is one of the leading providers of training maternity healthcare professionals. Some specific and relevant research to improve care is also carried out.
To contact call: 01676 534 671 or Email: email@example.com
Cariad Angel Gowns (for stillborn and neonatal loss)
Cariad Angel Gowns take donated wedding gowns and transform them into Angel burial outfits and memory packs for those who have suffered the baby loss through miscarriage, ectopic, stillbirth or
neonatal loss, and gift them to hospitals funeral directors and private families together with a certificate of life acknowledging the baby’s existence for those not eligible for a birth certificate. We fundraise to gift cuddle cots to hospitals and funeral directors throughout Wales and the UK.
To contact email: firstname.lastname@example.org
Child Bereavement UK
Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement. Every year we train over 9,000 professionals, helping them to better understand and meet the needs of grieving families.
For support email: email@example.com or call: 0800 02 888 40
CMV Action is a UK organisation of parents and volunteers who have come together to raise public awareness of Congenital CMV and to campaign for better prevention measures within our health service. We offer advice, support and friendship to anyone affected by CMV.
For support email: firstname.lastname@example.org or call: 0808 802 0030
The Ectopic Pregnancy Trust
Ectopic pregnancy is a life threatening condition, which affects 1 in 80 pregnancies. The Ectopic Pregnancy Trust aims to raise awareness of ectopic pregnancy and early pregnancy complications and provide support and information to those affected and those involved in their care.
For support call: 020 7733 2653 (call-back helpline service) or email: email@example.com
Ffion’s Gift are a South Wales based charity (Reg No. Wales 1167760) that has been created in Ffion’s memory. Ffion was born in the arms of an angel on 1st April 2015, having been diagnosed with the rare, life limiting genetic condition, Trisomy 18 (Edwards Syndrome). Ffion’s Gift aim to raise as much awareness of Edwards Syndrome as possible and also raise money to subsidise £100 towards non-invasive prenatal testing, for women who have already suffered a loss to Edwards. NIPT is only currently available privately throughout Wales and costs around £450.
To contact email: firstname.lastname@example.org
FirstLight formerly the Irish Sudden Infant Death Association was established in 1976; it provides crisis intervention and free professional counselling services throughout Ireland to bereaved parents and family members who have suddenly lost a child.
In 2017 over 2,000 children and family members received professional support from FirstLight.
For support contact our 24/7 Helpline 1850 391 391 or email email@example.com
Forever Stars was launched in 2014, to help raise funds to provide resources that will help and support bereaved families following baby loss. The charity funds bereavement suites, training for midwives, counselling services for siblings affected by babyloss as well as providing support materials for families to use to help them cope with the loss of their baby. Forever Stars is based in Nottingham.
To contact call: 0787 246 3856 or email: firstname.lastname@example.org
4Louis is a UK charity that works across the country to support anyone affected by miscarriage, the death of a baby or child. We also work to improve the care bereaved families receive from health care and other professionals.
To contact: Call 07955933097 or email: email@example.com
Group B Strep Support
Group B Strep Support is dedicated to eradicating group B Strep infections, including meningitis, in babies. GBSS provides up to date and evidence based information on group B Strep to families and their health professionals, and supports affected families.
For support and information, call 01444 416176 or email firstname.lastname@example.org.
ICP Support is the leading charity for the condition intrahepatic cholestasis of pregnancy (ICP). The organisation provides research-based information and vital support to women and anyone affected by the condition. The charity also aims to raise awareness of ICP and fundraises to support ongoing research, working to achieve its vision of ensuring that every ICP baby is born safely.
To contact call: 0121 323 4316 or email: email@example.com
JOEL The Complete Package
Promote and encourage positive mental health and wellbeing through subsequent pregnancies and parenting (either a child born before or after a loss). Empowering families to be celebrated as a whole and break the taboos associated with the life long journey of baby loss. JOEL aim to raise the awareness of pregnancy and parenting after loss and the impact this has on families, siblings, employers, schools and professionals
To contact Email: firstname.lastname@example.org or call: 07591740287
Jude Brady Foundation
Set up in 2008 in memory of Peter & Lynn Brady’s second son Jude who was stillborn in 2006, the Jude Brady Foundation exists to create a lasting legacy to a son that very few people got the chance to meet but who has made a huge difference to so many already. The foundation’s main priorities are to raise awareness of stillbirth and neonatal death, funds for child related good causes and help to reduce the number of babies dying each year.
To contact call: 01473 375034 or email: email@example.com
Kicks Count is the UK’s leading fetal movement awareness campaign, educating mums-to-be on the importance of monitoring their unborn baby’s movements. We provide different types of literature, all available for medical professionals to order to distribute for free, and attend exhibitions across the country to increase awareness.
To contact email: firstname.lastname@example.org or call 07403 656611
Kit Tarka Foundation
The Kit Tarka Foundation (KTF) was established after baby Kit Tarka died from neonatal herpes at just 13 days old. Neonatal herpes or HSV is a devastating virus which can ravage a new baby’s body in a matter of days and can cause death or long term health problems such as brain damage or cerebral palsy. HSV was not suspected in Kit so he never received the antivirals which would most likely have saved his life. Kit’s parents founded KTF with a mission to prevent newborn baby deaths through research and education with initial projects focussing on neonatal herpes.
The Last Kiss Foundation
The Last Kiss Foundation was founded to help bereaved families. We want every hospital equipped to ensure families have the gift of time before they have to give their last kiss goodbye. We will also try to help a family in need with financial support so that no baby is buried in an unidentified grave. We are working with others to provide bespoke training to midwives so that they can support grieving parents.
To contact email: email@example.com or call 07814 660742
Life After Loss
Life After Loss is here to help anyone affected by the loss of a baby. We provide support and information to those who have been through the death of a baby at any stage of pregnancy, or early in life, for any reason.
To contact email: firstname.lastname@example.org or call: 02892 605578
The Lily Foundation
The Lily Foundation is the UK’s leading charity dedicated to fighting mitochondrial disease. Our mission is to support people whose lives are affected by the condition, raise awareness and fund research into its prevention, diagnosis and treatment. 10 million people in the UK suffer from diseases in which mitochondrial dysfunction is believed to be involved, and every day in the UK a baby is born that will develop mitochondrial disease. The Lily Foundation is fighting to change this, with our ultimate aim being to one day find a cure for mito.
To contact call Liz: 0300 400 1234 or Email: Liz@thelilyfoundation.org.uk
The Lily Mae Foundation
The Lily Mae Foundation supports Parents and Families who have tragically and traumatically lost a baby to Stillbirth or to Neonatal Death. Despite its frequency, there is very little public perception of the devastating impact of Stillbirth and Neonatal Death on Parents and their Families.
To contact: email email@example.com or call 07853 969073
Little Things and Co
Little Things and Co provides emotional and practical support to anyone affected by the loss of a baby. Providing a dedicated memorial garden, suitable clothing to babies of any gestation, support group as well as practical items for professionals to improve the bereavement experience.
To contact email: firstname.lastname@example.org
Making Miracles registered charity provides baby trauma support and bereavement care. This is achieved through professional counselling, support groups, our baby memorial garden, our published book “The Baby” and memorial bears. We support the whole family including grandparents and siblings.
To contact email email@example.com or call 07791872115
MAMA Academy is a UK charity which has been helping save babies lives since 2012. Sadly, the UK has one of the highest stillbirth rates in the developed world with the majority of deaths potentially preventable. We empower parents with safer pregnancy information, educate healthcare professionals on stillbirth prevention methods and raise awareness of the issues around stillbirth and early infant mortality. Our midwifery resources aid consistent maternity care across the country; improving outcomes for families and their precious babies.
To contact email: firstname.lastname@example.org or call: 07427 851670
The Mariposa Trust
The Mariposa Trust works to support anyone who has suffered the loss of a baby, at any stage of pregnancy, at birth or in infancy, whether the loss be recent or historic. With 1 in 4 pregnancies ending in loss, around 250,000 families will lose a baby this year in the UK, and the Mariposa Trust is committed to remembering each life lost. Through its 6 support divisions the charity provides a range of support options, as well as global services of remembrance at Cathedrals, Minsters and Abbeys called the ‘Saying Goodbye’ services.
For support please email email@example.com or call 0845 293 8027
MISS (Miscarriage Information Support Service)
MISS is a support group for women and partners who have suffered a miscarriage or baby loss. It is a monthly group held in Aberdeen where we have a speaker from a health background (midwife or counsellor for example) then a therapeutic activity by a local business which members can get involved with (for example: making cards, painting chairs, yoga). Its free of charge to attend, confidential and aim to encourage members to attend so they do not feel alone and know there is others going through similar in their local area.
To contact email: firstname.lastname@example.org or call: 07702464874
The Multiple Births Foundation
The Multiple Births Foundation was founded in 1988 and has become a national and international authority on multiple births. We are the only charity internationally which employs healthcare professionals dedicated to supporting multiple birth families and educating and advising professionals about their special needs.
To contact email: email@example.com or call 020 3313 3519 / 020 8313 3519
National Maternity Support Foundation (NMSF)
National Maternity Support Foundation (NMSF) is also known as Jake’s Charity. It was set up following the tragic stillbirth of Jake Canter due to the nearest hospital maternity unit being closed. NMSF’s founding principles are to take a ‘proactive educative approach’ to maternity care. NMSF campaigns to help keep maternity services available, accessible, safe and well resourced. We ensure that prospective parents have all the information needed to make informed decisions. We support and promote, in partnership with other organisations, further research into stillbirth and neonatal death. We ensure there is adequate bereavement care available whenever it is required.
To contact email: firstname.lastname@example.org
Our Missing Peace
Our Missing Peace is a campaign which is trying to break the silence surrounding child loss. Our aim is to help all bereaved parents find support as quickly as possible and let others know that it is OK to talk about our children who are no longer with us. We also hope to highlight the word ‘Vilomah’ which means “against the natural order” and is the name for a bereaved parent.
To contact call: 07724 475453 or email: email@example.com
Petals is a charity that delivers a free specialist counselling to women and partners who suffer psychological distress from trauma and grief related to pregnancy loss, as well as working nationally to raise awareness of the need for emotional support following pregnancy loss.
To contact email: firstname.lastname@example.org or call: 0300 688 0068
Philip’s Footprints Charitable Trust
Founded in Jersey in 2008, Philip’s Footprints offer memory boxes to local families who sadly lose a baby or child from 12-14 weeks gestation to full term or neonatal loss and older children. They offer peer support and an annual remembrance service for families affected by the loss of a baby (any gestation) or child. They also fund antenatal training, equipment and information for pregnant women through Jersey Maternity to reduce the rate of stillbirths, premature births and complications at birth.
Contact Email: email@example.com Call: 01534 631173
Pregnancy Counselling & Care (Scotland)
Pregnancy Counselling & Care (Scotland) offer emotional and practical support to men, women and teenagers affected by a pregnancy related concern. Our counselling agency provides over 750 hours of free counselling per year and we see people whose lives have been impact by a range of different pregnancy related concerns including the loss of a baby. We offer open ended therapy and place no limit on how many sessions anyone is able to get because we feel that it is important individuals to have space to explore how things connect to your life as a whole. We also offer a fast track service where we are able to see someone within 48 hours of their initial referral for a maximum of three sessions.
Contact Email: firstname.lastname@example.org or Call: 0131 557 2060
Pregnancy Crisis Care (Plymouth & SE Cornwall)
Providing free, confidential counselling for any pregnancy loss within Plymouth and surrounding areas; this includes grief and bereavement counselling for individuals and couples who have suffered the loss of a pregnancy/baby through miscarriage, stillbirth, neonatal death, ectopic, or other medical reasons. Longer-term counselling is available to help clients if needed.
To contact Call: 01752 246788 or Email: email@example.com
Rainbow Trust Children’s Charity
Rainbow Trust Children’s Charity enables families who have a baby or child with a life-threatening illness to make the most of time together; providing expert practical and emotional support, where they need it, for as long as it is needed. We pair each family with an expert Family Support Worker who becomes a trusted and constant person in family life, providing support in the home and at hospital, and being there for the whole family if a child dies.
To contact email: firstname.lastname@example.org or call: 01372 363 438
Reflect is a free support service in York, Harrogate and Selby for anyone facing a pregnancy choice and for those struggling after experiencing pregnancy loss.
Anyone who has experienced a miscarriage, ectopic pregnancy or stillbirth will often find they feel much grief and loss and many have unanswered questions.
We offer a structured support programme for anyone struggling after a miscarriage, ectopic pregnancy, stillbirth or infant death to help you work through your emotions and grief. If the loss was recent or many years ago, we are here to help you work through this experience.
All our services are free and confidential and are open to men, women and couples.
To contact Email: email@example.com or call: 01904 676710
We are an Edinburgh based community charity, providing compassionate care for families, following the death of their baby, through specialist bereavement services, including befriending and counselling. We have a range of services to support bereaved parents through this by phone, email, 1-2-1 and group befriending, online groups, as well as counselling. We are the only charity in Edinburgh specialising in baby bereavement counselling and all our services are free and open ended.
To contact call: 0131 622 6263 or email: firstname.lastname@example.org
Scottish Cot Death Trust
The Scottish Cot Death Trust (SCDT) is the only cot death charity in Scotland. Our support services include home visiting bereavement support, counselling and befriending and is available to any family affected by the sudden, unexpected death of a baby or young child. SCDT funds research into the cause(s) of cot death and provides free education to parents and professional on ways to reduce the risks of cot death and to raise awareness of cot death.
To contact email: email@example.com or call: 0141 357 3946
SiMBA is here to support anyone who has suffered the loss of a baby during pregnancy or close to the time of birth. We aim to enhance the bereavement services already being offered and help families to gather precious items for their Memory Box. We understand the importance of Family Rooms and the need for a place to remember and reflect with our Tree of Tranquillity. We also offer drop in support groups, 24 hour on-line support and training for midwives and hospital staff.
To contact email: firstname.lastname@example.org or call 01368 860 141
Sophia Pregnancy Loss Support
Sophia – Pregnancy Loss Support aims to support anybody who has experienced the tragic loss of a baby through miscarriage, TFMR, stillbirth and neonatal death. We aim to support through monthly groups and online support. We aim to continue to work towards changing the taboo and silence around baby loss.
To contact email: Sophiagroup16@gmail.com
Spinal Muscular Atrophy Support UK
Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy). Without intervention, due to breathing difficulties, babies with the most severe form of SMA rarely survive beyond two years. There are many families bereaved by SMA in the UK. SMA Support UK provides information, support, practical advice and emotional support at the time of diagnosis and through the difficult times ahead.
To contact email: email@example.com or call: 01789 267520
The Twins and Multiple Births Association
Tamba is the only UK-wide charity dedicated to improving the lives of thousands of families with twins, triplets or higher multiples. Tamba supports all multiple birth families, including those with Twin to Twin Transfusion Syndrome, Single Parents, parents of multiples with Special Needs and a Bereavement Support Group to support parents who have lost a child.
To contact call: 01252 332344 or email: firstname.lastname@example.org
Teddy’s Wish raises funds for potentially life saving research into SIDS (sudden infant death syndrome), neonatal death and stillbirth and supports grieving families.
To contact email: email@example.com or call: 07813133787
TimeNorfolk provides free confidential help and support to anyone:
• Who has experienced pregnancy loss through miscarriage, ectopic pregnancy, termination or stillbirth
• With an unplanned pregnancy
• Needing support through their pregnancy
• Needing support for other pregnancy related issues eg infertility, pre or post-natal depression
To contact call: 01603 482732 or email: firstname.lastname@example.org
Together for Short Lives
Together for Short Lives is the UK charity for the 49,000 children living with life-limiting conditions, and their families. We are here to ensure that no child or family is ever left behind when it comes to getting vital care and support. We provide help, information and support to families and work together with everyone who provides care to these children and families. We can’t change the diagnosis, but we can help children and families make the most of their time together.
To contact email: email@example.com or call: 0117 989 7820 and Family Helpline 0808 8088 100
Upon Butterfly Wings
Upon Butterfly Wings is a UK organisation that hand make and donate burial clothing, blankets, hats, teddies, cribs and keepsakes to hospitals, mortuaries and funeral homes around the UK. These precious items are used to dress and wrap babies who have sadly died through early miscarriage, due to medical reasons, premature birth, stillbirth or while in the neonatal unit. While the keepsakes are given to the parents upon leaving the hospital as a small reminder of their baby. The donations are given to these bereavement services completely free of charge and are made from volunteers using their knitting, crocheting and sewing skills.
To contact email: firstname.lastname@example.org