BLAWxCOVID19 – Baby Loss Awareness Week

Baby Loss Awareness Alliance

Receiving Support during the
Corona Virus Outbreak

We are so sorry to hear of any parent or family that has experienced baby loss.

 

It can be especially hard during this time of lock down and social distancing.

No matter what your experience is, our Alliance charities are working to ensure they continue to support as many people as possible during the COVID-19 outbreak.

 

Advice and resources are still available to keep providing the much needed support for families across the UK.

If you are seeking specific advice or support during the outbreak, please see the revised times and resources available below.
Please always ensure you’re familiar the with generic NHS guidelines surrounding COVID-19.

Baby Loss Support

Aching Arms – Support via email and social media for both newly and longer ago bereaved parents’ who are worried or anxious at this time, especially women pregnant after loss.

ARC: Antenatal Results and Choices – specialised bereavement support around termination of pregnancy after a prenatal diagnosis.

Contact Number: 07875480076
Email: info@arc-uk.org

Children of Jannah– supporting bereaved parents who experience baby loss, holding at their core the Muslim belief that all children who die enter Heaven (called Jannah in Arabic).

Get in touch via website (live chat available): https://www.childrenofjannah.com/contact

Cradle – supporting anyone that has experienced baby loss, run by a dedicated team of volunteer ambassadors, of which all have experienced early pregnancy loss.

Zoom support available via email: cradle@earlypregnancyloss.co.uk

Daisy’s Dream – professional support service which responds to the needs of children and their families affected by life threatening illness or bereavement. Available in Berkshire, the surrounding areas and East Cheshire.
Please note: the service is primarily focused on the children in a family, they are sadly unable to support parents unless there are already older children in the family.

Phone: 0118 934 2604

The Ectopic Pregnancy Trust – The Ectopic Pregnancy Trust supports women and their families through the devastating ordeal of ectopic pregnancy loss.

Information and support via call-back helpline and email.

Helpline: 020 7733 2653
Email: ept@ectopic.org.uk

First Light – professional counselling support for bereaved parents and families in Ireland

Contact Number: 1850 391 391
Email: info@firstlight.ie

Lullaby Trust – support for bereaved families who have lost a child through SIDS.

Bereavement Support: 0808 802 6868
Email: support@lullabytrust.org.uk

Information Line: 0808 802 6869
Email: info@lullabytrust.org.uk

The Miscarriage Association – support and information for anyone affected by miscarriage, ectopic pregnancy or molar pregnancy with helpline, live chat, email service and online support available.

Helpline: 01924 200799 (Mon-Fri, 9am-4pm)
Email: info@miscarriageassociation.org.uk

MISS (Aberdeen) – Supporting anyone impacted by miscarriage. Open to any region & currently providing online support packages, as well as continuing their phone service.

Helpline: 07808 638428
Email: info@miscarriageinfosuppservice.co.uk

Muma Nurture – supports fertility, pregnancy and related loss through counselling, holistic therapies and support groups.

Contact Number: 07460775495

Email: contact@mumanurture.org.

Petals – the baby loss counselling charity, offering free specialist counselling to women and partners who suffer psychological distress from trauma and grief related to pregnancy or baby loss.

Helpline: 0300 688 0068
Email: counselling@petalscharity.org

Sandsstillbirth and neonatal death charity. Up-to-date information and support available for bereaved parents, families and healthcare professionals.

Helpline: 0207 436 5881
Email: helpline@sands.org.uk

Simpson’s Memory Box Appeal (SiMBA) – memory boxes and baby loss support for bereaved parents and professionals.

Support Groups via Zoom: https://www.simbacharity.org.uk/support/support-groups/

Teddy’s Wishsupport for bereaved parents and families through care packages and fully funded counselling.

Contact them via the website here. 

TimeNorfolkthe pregnancy loss charity, offering free specialist support to women and partners. Covering all pregnancy related issues.

Phone:
01603 927487
Email:
info@timenorfolk.org.uk

The Compassionate Friends – peer support for bereaved parents and their families.
Please note: support is predominantly for parents who have lost a baby of a few months old rather than loss to miscarriage, stillbirth or in the early weeks of life.

Phone: 0345 123 2304 (10 am – 4 pm, 7-10 pm, every day)
Email: helpline@tcf.org.uk

Together for Short Livessupport for bereaved families and professionals working to support children.

Advice for professionals here
Advice for families here

Tommy’shealth information for parents-to-be, and funding for research into the causes of pregnancy loss.

Email: midwife@tommys.org

If you have non-urgent questions, they have developed Tommy’s Midwife, a skill for Google Assistant and Amazon Alexa that answers many pregnancy queries, including some about COVID-19.

Read more about the Tommy’s Midwife Alexa skill here.

 

Funerals

Co-op Funeralcare – Support and services for funerals through the Co-op. 

Phone: 0800 088 4872

Funeralcare & Baby Loss – Heartfelt and honest account of baby loss and working in funeralcare from Alliance Member Little Things & Co CEO.
Contains sensitive material that may be upsetting.

Baby funerals: Remembering with loveRosalie Kuyvenhoven speaks of her experience in leading ceremonies that honour the life and death of a baby.
Contains sensitive material that may be upsetting.

Grief & Bereavement

Butterflies Bereavement Support (Hampshire, Isle of Wight and West Sussex) – Providing bereavement care and support to individuals and families. Counselling and listening sessions available, along with virtual group chats, telephone and Face time support opportunities.

Phone: 01983 619503
Email: info@butterfliesbereavement.co.uk

Child Bereavement UK – helping children, parents and families to rebuild their lives when a child grieves or when a child dies. We support children and young people up to the age of 25 who are facing bereavement, and anyone affected by the death of a child of any age.

Helpline: 0800 02 888 40
Email: support@childbereavementuk.org

Children’s Bereavement Centre (Nottinghamshire / Lincolnshire) – support available for those struggling with a bereavement or the terminal-illness of someone they love, via the telephone, video call, website and Facebook.

Phone: 01636 551739 (this will go straight to voicemail but messages are being picked up daily and we will call you back as soon as possible.)
Email: info@childrensbereavementcentre.co.uk

Good Grief Trust – Support and services for those experiencing grief through the loss of a loved one.  

Heart in Their Hand – Supporting families through the death of a loved one, including child and baby loss, with products available to send to others experiencing grief. 

Telephone: 07387 669 036
Email: enquiries@heartintheirhand.co.uk

Simon Says – Supporting families through the death of a loved one, including child and baby loss. 

Telephone: 023 8064 7550
Email: info@simonsays.org.uk

NHS & Health Services

Barking, Havering and Redbridge University Hospitals NHS Trust – University Hospital and Alliance Member located in and around Romford.

Thinking of you servicefor contacting those in hospital.

Institute of Health Visitors – UK Centre of Excellence supporting the development of universally high-quality health visiting practice.

Support for parents here.
Support for Health Visitors here.

Telephone: 07387 669 036

NHS (National health Service) – latest advice for the general public during COVID-19 lockdown.  

Telephone: 111 (for non-emergencies), 999 for all emergencies

Royal College of General Practitioners – latest advice for GP’s during COVID-19 lockdown.  

Royal College of Midwives – latest advice for midwives during COVID-19 lockdown.  

Royal College of Nurses – latest advice for nurses during COVID-19 lockdown.  

Phone: 020 7647 3333

Royal College of Obstetricians and Gynaecologists – latest advice for Obstetricians and Gynaecologists during COVID-19 lockdown.  

Phone: 020 7772 6200 / Out of hours telephone (5pm – 8am): 020 7772 6260

Royal College of Paediatrics and Child Health – latest advice for health care professionals specialising in child health and medicine during COVID-19 lockdown.  

Phone: 020 7092 6000 (Mon-Fri, 8.30am-5pm)

University Hospitals of Leicester NHS Trust – latest NHS advice for visitors from the Leicester NHS Trust.

Phone: 0300 303 1573

Family Assist (from West Sussex County Council & the NHS)– latest NHS advice for pregnant women accessing the NHS in the West Sussex area. 

Support for Pregnant Women

Fertility Network UKproviding support for pregnant women, people trying to conceive and those going through fertility treatment.

Contact Number: 01424 732361

ICP Support – support and advice for women with ICP (intrahepatic cholestasis of pregnancy).

Kicks Count – support and advice for pregnant women and parents, focusing on the movement of the baby during pregnancy. 

Mama Academy – Mother’s and Midwives Academy, providing support and advice for pregnant women. 

Health Advice & Support for Pregnant Women, Newborn Babies & Families

Action on Pre-Eclampsia (APEC) – support and advice for pregnant women around pre-eclampsia. 

Helpline: 01386 761 848 (Monday to Thursday from 8.30am – 4.00pm)
Email: info@apec.org.uk

APS Support – support and advice for those caring for those or diagnosed with Antiphospholipid syndrome (APS). 

Asianparent – support for families and parents, based in Singapore. 

Phone: +65 6 344 2865
Email: info_sg@tickledmedia.com

Baby Lifeline – support and advice for pregnant women and parents to babies and young children around the world.

Phone: 01676 534671
Email: info@babylifeline.org.uk

Bliss – Support and research for parents who have babies born premature or sick. 

CMV Action – a charity focused on raising public awareness of Congenital CMV and to campaign for better prevention measures within our health service.

Helpline: 08454679590
Email: info@cmvaction.org.uk

Group B Strep Support – information on group B Strep before, during and after birth provided online, by email and their helpline (weekdays 9am-5pm.)

Helpline: 0330 120 0796
Email: info@gbss.org.uk

The Lily Foundation providing families with support and information around mitochondrial disease.

Phone: 0300 400 1234 or 07947 25724
Email: liz@thelilyfoundation.org.uk

SMA Support UK – support for those who have or are caring for a child with Spinal Muscular Atrophy and information about the condition and the latest developments with new treatments.

Helpline: 01789 267 520
Monday to Thursday (9:00am – 3:30pm) and Friday (9:00am – 1:00pm), except public holidays.

Please note: due to the coronavirus, all staff are currently working from home. You can still call the number above and leave a message with your contact details and we will get back to you as soon as we can.

Email: office@smauk.org.uk

Soft Uk – support for families who have received a diagnosis of Trisomy 13 or Trisomy 18 or are caring for someone who has been diagnosed.

Twins Trustsupporting families with twins, triplets and more, from pregnancy through to childhood.

Helpline: 0800 138 0509
Email: asktwinline@twinstrust.org

Stay up-to-date with #BLAWxCOVID19

 

We are regularly sharing up-to-date information from our Alliance charities via Facebook, Twitter and Instagram.

Follow the hashtag #BLAWxCOVID19 for live updates from the BLAW2020 Alliance.